Igenex 6050 is back

[SSS]

I am numb. If you could humor me, maybe. I know what all the lines mean, I have checked it.

 

Please keep in mind, she has high EBV, and this is messing with me, as it keep saying cross reactive to EBV.

Also I read: If you see band 18, this is lyme, no turning back.

Igenex considers these test results negative.

Our Labcorp WB had only 1 band showing, IgM band 23, positive.

I know IND means they saw 'something' faint, right? But not enough to call, for sure.

 

IFA: Negative

Multiplex Whole Blood: Negative and Negative.

 

IgM

18 kDA +

**23-25 kDa IND

**41 kDA IND

 

IgG

30 kDa +

**31 kDa IND

**39 kDa IND

**41 kDa ++

 

 

I know you will all say go to an LLMD.

Honestly, I want to take the negative, and run.

[SSS]

Thanks pandas16.

There was a cancellation at an LLMD's office in the bay area (3 hours from here) for tomorrow afternoon.

(Dr. P.)

I am so afraid.

[LNN]

There was a cancellation at an LLMD's office in the bay area (3 hours from here) for tomorrow afternoon.

(Dr. P.)

I am so afraid.

S,

You already know as much as the rest of us on how to interpret the bands, the ambiguity you're going to get from the EBV, the reasons why something can be IND. You know 31, 34 and 39 are significant and taken as a group and with her symptoms, paint a suggestive argument.

 

So...why be afraid? Yes, I know. 1st grade is days away. You don't want her childhood taken away from her. But...the infection, if it's there, has already occurred. You know you're dealing with metals. The awareness of lyme prior to any chelation is something you should be patting yourself on the back about. You could never have prevented the tiny tick bite. But ever since, you've been devoted to getting her well, living on forums to be a detective and support your daughter in the way no physician has. You have found puzzle pieces while she's still young, still able to re-gain whatever she's struggled with.

 

You know it will be a hard road. But finding the needle(s) in the haystack is the only way to reach your destination. Try not to be afraid. You know I had what I affectionately call my "breakdown" after our lyme dx. As we end an awesome summer and quickly slide into the murkiness of KPU, I totally get that "I want to run away and throw up - maybe not in that order" feeling. But you won't be alone. And your daughter will have the best shot at getting healthy that she's ever had so far. Yes, there may be other things that get uncovered. Maybe it won't be "the" answer. But it's sort of like going into labor without an epidural. Yes, the pain that lies ahead may be terrifying and your worst nightmare. But the only way to get to the other side is to go thru the process. No going backward or crossing your legs. And remember, just like with child birth, your mind will eventually forget the worst of the pain once you get to healthy. It's nature's way of making sure we all don't stop at the first kid - or the first herx.

L

[Suzan]

I'm so glad you have gotten in so quickly to the LLMD. Although my dd9's results had different bands, your results were similar to hers (minus the EBV though....). She now tests positive after a few months of treatment. Hang in there, LLM said it, going through the process you will end up on the other side. Knowledge is power right? You will have a path to take and things will change. Hang in there, good luck tomorrow.

 

Susan

Edited August 9, 2011 by Suzan

[butterflymom]

=

Edited October 5, 2015 by tampicc

[SSS]

The support of this board/members ACN, online and offline, has touched me deeply.

Thank you for helping out my beautiful little girl, for reaching out to us.