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Posted

I posted last week and my sons tics keep getting worse! His movement tics are now turning into trembling. His arms shake! This is very new as thi tic has never happened before. His tics are also becoming more painful!

 

Is there something going around that could be causing this? We are in Colorado (Denver) and are patients of Dr. L, I am at a loss for what to do next! Do we try to ask for a steriod burst? Should I video his tics? Will steriods make him worse?

 

So far my other twin is still doing ok. He has started finger smelling again but his tics (motor/vocal) haven't returned.

 

Please help!

 

I am at a loss but hate that his tics are increasing so much...they will start a new school in 2 weeks and I hate that he could be a tic machine by the time school starts if this keeps up!

 

Thanks!!!!

Jen

Posted

I was also going to suggest emailing a video. You may also want to ask her about testing mineral levels. My DS has previously had very odd movement reactions to Zicam (zinc) and tamiflu. After 3 yrs of peeling things away, we've discovered a zinc/B6 deficiency and will begin supplements this weekend. Zinc is crucial to the immune system. She may dismiss it, but it's worth asking.

 

We also discovered a copper deficiency (which is weird because zinc and copper are usually ying/yang so odd to have both be deficient. But copper is also involved in dopamine/epinephrine/norepinephrine synthesis. We started adding copper last week under doctor's guidance and have seen subtle but welcome changes). So a mineral workup may be helpful (maybe do a blood draw to check strep titers and check minerals at the same time).

 

Prednisone tapers were extremely helpful for my DS, despite his subsequent lyme dx, but it helped his OCD, ADHD and dysgraphia much more than it helped with tics.

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