POSITIVE STREP! After 15 months of this....Keflex dose?

[eljomom]

Well, I can't flipping believe it. Some on here won't believe it when I say it, but dd7 has never had but one throat culture during this whole thing. One rapid, negative. Titers normal. Did one month of Augmentin. Got worse--this was last November. Been on 100 mg Zith. ever since December. Still ticcing, mild ocd...not as severe as it was when it started last summer, but still.....

 

About 2 weeks ago, dd9 started ticcing....just one or two tics, but ticcing. About 10 days ago, dd7 (my Pitand child) tics got worse than they have been. always has at least a dozen going on, but not super obvious all the time. Well, 10 days ago, she started to tic almost nonstop....nose and eyes. I think I was becoming debilitated myself just watching.

 

My husband, who has been rather blasee about all of this, finally said "we need to rule some things out." Dd7 woke up last night (like she used to do all the time) with terror in her eyes, screaming. Husband said "get a strep test.....lets just start crossing things off the list." I thought "Please....honestly.....she has NO SYMPTOMS!!!! NO FEVER, NO SORE THROAT, NO STOMACH ACHE, NO HEADACHE (stuff dd9 complains about ALL THE TIME!!). Plus she seemed to be PITAND, with this all getting really bad after a one-day high fever, impetigo (staph), no titers, etc..."

 

Took her to new ped. this afternoon. That nursed swabbed the #$@% out of her ( I told her to get it good). She said she did a double swipe of each tonsil. I knew it would be negative. Doc came in......rapid was POSITIVE!!! How flipping many times, or how long, could she have had strep??????? I feel horrible. Our pandas doc knew she'd never had a full culture. I knew that. Why didn't I do it sooner?

 

I have to be realistic that this could very well NOT be the golden egg I am looking for......

 

Ped. put her on Keflex......1.5 teaspoons twice a day (250/5ml) for 10 days. Dd7 is almost 50 pounds. How does this dose sound? Do I scrap the 100 mg zithromax (obviously didn't keep the strep away....the strep that I wasn't even worried about since we were pitand)...sigh.

 

Thanks for input.

[dcmom]

My suggestion would be to put her on clindamycin if possible. My girls both had asymptomatic strep at initial onset, but thankfully we did have them cultured. Both have maintained low titers. LOW TITERS ARE MEANINGLESS.

 

My kiddos both had strep for the first time in 2 years in April (btw one was on Augmentin AND zithromax at the time). We did 2 weeks of clindamycin- it knocked the strep out. We followed up with steroids to stop the autoimmune reaction. They are well now, although NOT perfect, but trending better.

 

This april, the younger one DID have typical strep symptoms- the older one only had minor fatigue and an increase in pandas issues- both positive for strep.

 

Good luck- maybe you have found the issue, and can start the healing process (it does take time, look at weekly trends).

[eljomom]

dcmom---thanks again. I am afraid of clinda since I was put on that a few years ago for suspected cellulitis, lyme, or who knows what in one of my fingers.....and I had major diarrhea within a day of starting it. I know it is associated with c-difficile, which my oldest daughter had at age 2, and almost died from. She had it repeatedly 3 times....very scary.

 

Dr. L said at our last visit to get dd 7 (and 9) to ENT to have their tonsils out. Based on no documented strep. So I blew it off. Now I wonder if she hasn't had it all along......I mean, no symptoms!! How would one know if it weren't for the tics.....and even then, especially when they always tic!

[butterflymom]

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Edited October 8, 2015 by tampicc

[eljomom]

tampicc---has the IVIG helped the tics? Was your son chronic??

[butterflymom]

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Edited October 5, 2015 by tampicc