blood pressure crash/heat intolerance

[cynditk]

Hi all,

 

We had a bizarre thing happen the last several weeks. When we went to my son's PANDAS doc for a check-up, his BP readings were extremely low, they got down to 120/20. He also had a 100 degree fever. They packed him in ice, and his BP went up slowly, temp went down slowly. He seems to have lost the ability to regulate his temperature. He can't go out if it's over 70 degrees or he gets overheated. This seems to have started since he's been on prednisone. Anyone else have this experience?

 

We are going tomorrow to get him tested for lyme, he has been so ill the last months he cannot attend school, there seems to be more going on here than just PANDAS I'm disappointed as we had an apt with Dr B in last August but we will have to cancel as he is not well enough to travel. So discouraged right now.

[JAG10]

Hmmm, well IDK. I can share this experience of my dd11 when she was only 7 and in second grade (prior to knowing all this bleep was related to PANDAS)

 

She attends Catholic school, they stand in the morning for prayers and are told not to lean on their chairs. It was the beginning of October and very hot, in the 90's. Two mornings in a row, she dropped to the floor, but not passed out. After the second time, we took her first to the ped who said her BP was unusually low. Next stop was the neurologist, normal EEG and neuro exam. Huh? Well, then it turned into a behavior where a few days later her daddy gave her an answer she didn't like and she fell to the floor and "lost her balance."

 

Well, at 7, she wasn't a very good actress, it was obvious what began as genuine syncope morphed into behavioral which we quickly put the kabash on!

 

IDK what kind of medications your child is currently taking? That was also suspected at the time, although there were no changes recent to her episodes. I think it was a combination of heat, dehydration and a little body on topof being a sick kid underneath it all. It never happened again and that was 4 years ago.

 

I'm sorry you are feeling so discouraged! I hope things turn around soon.