IOCDF Conference Exhibit

[browneyesmom]

Hello PANDAS/PITAND parents... I have a request to ask each of you. As most of you are aware from my recent post, I am exhibiting for PANDAS - PITAND Awareness & Research Support at the IOCDF Conference this coming week. We will be on the lower level. PANDAS Network is also holding a meet and greet on the same level... see Vickie's post about that here: http://www.latitudes.org/forums/index.php?showtopic=14372

 

The mission of this organization is to raise awareness & also to raise funds for Dr. Cunningham's PANDAS research, which is pivotal. I am putting together some materials for the exhibit. One thing I would like to do is create a video of children to help increase concern of those visiting the exhibit. I can purchase clip-art to use for this; however, it would be great if the photos are of children who actually *have* PANDAS/PITAND.

 

Thus, I need photos of children... preferably photos that would cause someone to feel sympathetic enough to want to donate funds to support research for our children... so those pics which depict symptoms of this horrific condition... and yes, sad, moving pics would be helpful to show the reality... are all very helpful... you get the idea. No names or other identifying information will be used in the video. I will simply display what symptom it represents with the associated photo(s).

 

If any of you has any photos you would be willing to give me permission to use for this purpose (it will play on a laptop at the exhibit in a continuous loop & I may use it other places in the future, such as on the website: http://www.pandas-pitandawaren​ess.org/ ... need to make some updates/changes to that this weekend as well - but, these would be always used for only this cause), please email them to me: PANDAS-PITAND_Awareness@cox.ne​t

 

This is what I have listed (sent to be printed already) for the s/s: OCD, Tics/Sydenham’s Chorea, Emotional Lability, Personality changes, Separation Anxiety, Tactile/Sensory Defensiveness, ADHD, Major Depression, Urinary urgency/enuresis, Rages, Scholastic Decline, Thoughts of Self-Harm & more - anything that demonstrates that would be great!

 

Thanks very much!!

[browneyesmom]

Hello everyone... thank you to everyone who emailed pics to me and gave permission for me to use them for this cause. Vickie got a great head start on it for me this weekend and I worked on it a little more today. It's coming along well and is a very compelling glimpse into life with PANDAS.

 

Just a reminder that no names will be used and I'm using clip-art as well to mix it up and help to better protect identity of PANDAS children. I've also removed names if they were visible on any armbands or name tags.

 

 

At this point, I think we have all the images that we need. Thank you again to everyone for your support on this project!! I hope to see some of you at the IOCDF conference this weekend!