IOCDF Conference & Update

[browneyesmom]

Things have been really hectic in our lives the last few months and especially the last few weeks, so I have not been on here to post for a while. Many of you will remember our horrific winter when we had to call 911 five times in a 2 week period around Christmas because she was so ill. I worried that we might not get her back that time. She wound up hospitalized for several days and received her first (of several) high dose IVIG infusion. She is probably about 85% at this point. She was on home-bound education the rest of the school year, except the last few days, which was so important as we look toward next year in hopes she will be back for at least a modified schedule, if not a normal one.

 

I will be attending (and exhibiting to raise PANDAS Awareness) the IOCDF Conference this year in San Diego and wondered if anyone here might be attending as well. Here is the link with information about the schedule: http://www.ocfoundation.org/uploadedFiles/MainContent/Our_Programs/Conference/2011%20Conference%20Reg%20Brochure%20%28web%20version%29.pdf - they have quite a selection of talks, including an entire track for Kids/Teens, one for Parents/Families, several for Healthcare Professionals, etc.

 

and this link is about attending the conference itself (also has links to discounted hotels, air fare, etc.): http://www.ocfoundation.org/Conference.aspx

 

Please post if you'll be attending - I'd love to meet some of you there!

[KaraM]

I won't be attending this year, but did last. It was great. I wish I could go again (and bring my dd). Thank you for your efforts to spread the word.

 

But I wanted to reply and just say WOW!!!!!! 85%!!!!!! I do remember your posting from last winter very well and am just THRILLED beyond words to hear how far your daughter has come. You are both truly an inspiration.

 

Kara

[NancyD]

That's FANTASTIC news to hear about your DD!!!

[browneyesmom]

Thank you Kara & Nancy. It is phenomenal news! In fact, I should go post a separate update for those who are just arriving in this PANDAS world.