hawks Posted July 16, 2011 Report Posted July 16, 2011 I posted this to the PANDAS / Pitand forum as well. We are seriously considering 3 week intesive Clinic OCD with Dr. Storch in Florida for DS who is turning 15 tommorrow. He was diagnosed with PANDAS in Jan 11' and he is also being treated for LYME as of Feb 11'. The OCD seems to be at the root of all of the behavior issues that he is experiencing. I know I asked about this a while back but can anyone share their experience from this clinic. I am bringing it back up because we are to the point of taking this step now! We were hoping DS would be ready to go back to school at the start of 9th grade but doesn't look to promising at this point. The antibotics have helped a lot from where we were Jan-Feb but we have such a long way to go. DCmom & Dedee I think you are there now or will be going soon. Hoping and praying it helps!
mommakath Posted July 17, 2011 Report Posted July 17, 2011 We have taken both of our OCD/ Lyme/ Bartonella kids thru Storch programs. They are incredibly talented group that can only help. The tools they give the kids, and parents, are valuable. They are very helpful getting insurance to pay, working out a deal if no insurance, and even had a Skype program that we have used when our kids need a booster. They are equipping kids to cope with their symptoms and it works! If you can swing it, do it! You will not be sorry! Katherine
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