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Hi,

 

I wanted to share some things I learned about getting alternative treatments and testing covered by insurance. The local DAN doctor that I was seeing up until about May had filed everything under Tourette's. Everything would come back being denied.

 

I switched local doctors after figuring out his intentions and what he was really about. He was the only one we have in Nebraska so I end up traveling a little longer for chelation. This doctor said to me I'm not going to and I will never file anything under tourette syndrome. We'll file things under things like: headaches, diaherra, itchy eyes, etc. They cover him very well this way and he's out of network.

 

I just wanted to suggest that for any of you having trouble getting insurance to cover things, try not using tourette's as the diagnoses. It made a big difference for me. I'm guessing this is a common issue. After finding this out I came across an article about a child with autism who received speech therapy and the insurance wouldn't cover it because the diagnoses put down was autism.

 

Carolyn

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Hi Carolyn, yes, that's what our DAN doctor does too. Chronic diarrhea, allergies, etc. It has worked very well - and my son did have those things when the tests were done so it wasn't lieing. They see Tourettes as a "disease" unto itself rather than a symtom of other things being out of balance. Such a shame,

 

Giselle

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Hi Carolyn

I just wanted to know more about the therapeutic effects of the massages, accupuncture and stuff that you did. I would like to get it done soonest possible.

And how often must i got for these?

 

Do u recommend that i go direct to TCM docs to do the accupunture, cupping and deep tissue massages?

 

Also, as i am new to this forum I want to take start too by taking the supplements that everyone's talking about but how can i find if i am deficiant in any of the minerals ?

 

HELP me...

 

fuschia

 

 

 

Hi,

 

I wanted to share some things I learned about getting alternative treatments and testing covered by insurance.  The local DAN doctor that I was seeing up until about May had filed everything under Tourette's.  Everything would come back being denied. 

 

I switched local doctors after figuring out his intentions and what he was really about.  He was the only one we have in Nebraska so I end up traveling a little longer for chelation.  This doctor said to me I'm not going to and I will never file anything under tourette syndrome.  We'll file things under things like: headaches, diaherra, itchy eyes, etc.  They cover him very well this way and he's out of network. 

 

I just wanted to suggest that for any of you having trouble getting insurance to cover things, try not using tourette's as the diagnoses.  It made a big difference for me.  I'm guessing this is a common issue.  After finding this out I came across an article about a child with autism who received speech therapy and the insurance wouldn't cover it because the diagnoses put down was autism.

 

Carolyn

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Welcome Fuschia,

 

From the massage, acupuncture and cupping it helps a lot with relaxing for me. Before starting to get massages I had really bad head jerking, which I rarely get the head jerking now. I get it once in a while if something's really bothering me or I'm really excited. Still after receiving massage I was very tight. After receiving cupping from my acupuncturist and I went back to my massage therapist. He asked me what I did or what I changed because I'm not hard as a rock like I used to be. I told him Chinese cupping. Acupuncture is great for a lot of different things. We work on several things with that for example: tics, candida, gagging issues, constipation, allergies, headaches, etc.

 

How often you go for these depends on you. When I received massage on a regular basis I went usually once a month. Since starting acupuncture and cupping I don't get a massage that often. My acupuncturist will tell me if she notices my muscles getting pretty tense and suggest that I get a full body massage and that's usually when I get one which isn't very often anymore. For acupuncture I go about every 3 weeks right now. If I'm doing well with sleep, low stress levels, etc. we'll stretch it out to once a month. If I'm having trouble with these things occasionally we'll do every 2 weeks.

 

The goal is to get to where I'm just going to acupuncture like 4-5 times a year for maintenance. Right now I have pretty high stress levels with family issues, so we've been sticking with about every 3 weeks.

 

Yes, I recommend that you go to someone who specializes in TCM acupuncture (master's degree, etc.) Doctors and chiropractors can do acupuncture, but they have very little training. If someone's sticking needles in me I would want them to have as much training as possible. I also feel it’s very important to feel comfortable with whoever you choose as your acupuncturist, etc. Otherwise it defeats the purpose.

 

I originally started off taking supplements and had no testing done to see what I was deficient in. I started taking them from Bonnie's list. I can't find the direct link right now, but if no one else posts it in the meantime I'll find it and post it. http://www.curets.com Then go to the holistic and natural page.

 

I did the spectracell blood test for vitamins last year. I suggest researching all you can first. Try to find a DAN or environmental doctor.

 

Carolyn

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Hi Carolyn

Thank you so very much for your detailed reply.

 

YES! i hv done some researching on the accupunturists around my home.. Coz' i live in Singapore, TCM docs are easily found, its just looking for a good one. Here, only TCM docs with the degree are able to perform accu. legally so i think its rather safe. I will find a reputable one. The TCM doc is also able to do cupping.

 

As for Bonnie's vits..i will go to her site and read more. May i know how long hv u been on Bonnie's vits so far? will it be for a lifetime to be on her supplements?

 

thank you once again.

 

fuschia

 

 

 

 

 

Welcome Fuschia,

 

From the massage, acupuncture and cupping it helps a lot with relaxing for me.  Before starting to get massages I had really bad head jerking, which I rarely get the head jerking now.  I get it once in a while if something's really bothering me or I'm really excited.  Still after receiving massage I was very tight.  After receiving cupping from my acupuncturist and I went back to my massage therapist.  He asked me what I did or what I changed because I'm not hard as a rock like I used to be.  I told him Chinese cupping.  Acupuncture is great for a lot of different things.  We work on several things with that for example: tics, candida, gagging issues, constipation, allergies, headaches, etc. 

 

How often you go for these depends on you.  When I received massage on a regular basis I went usually once a month.  Since starting acupuncture and cupping I don't get a massage that often.  My acupuncturist will tell me if she notices my muscles getting pretty tense and suggest that I get a full body massage and that's usually when I get one which isn't very often anymore.  For acupuncture I go about every 3 weeks right now.  If I'm doing well with sleep, low stress levels, etc. we'll stretch it out to once a month.  If I'm having trouble with these things occasionally we'll do every 2 weeks. 

 

The goal is to get to where I'm just going to acupuncture like 4-5 times a year for maintenance.  Right now I have pretty high stress levels with family issues, so we've been sticking with about every 3 weeks. 

 

Yes, I recommend that you go to someone who specializes in TCM acupuncture (master's degree, etc.)  Doctors and chiropractors can do acupuncture, but they have very little training.  If someone's sticking needles in me I would want them to have as much training as possible.  I also feel it’s very important to feel comfortable with whoever you choose as your acupuncturist, etc.  Otherwise it defeats the purpose. 

 

I originally started off taking supplements and had no testing done to see what I was deficient in.  I started taking them from Bonnie's list.  I can't find the direct link right now, but if no one else posts it in the meantime I'll find it and post it.  http://www.curets.com  Then go to the holistic and natural page. 

 

I did the spectracell blood test for vitamins last year.  I suggest researching all you can first.  Try to find a DAN or environmental doctor. 

 

Carolyn

9450[/snapback]

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Fuschia,

 

Yourwelcome for the reply. Here's the list of the individual vitamins: http://www.tourette-syndrome.com/holistic.htm

 

If you can tolerate her new all in one vitamin I think that's great. I can't tolerate the ts plus all in one vitamin because it makes my tics worse. So I've been doing individual vitamins. Though I've always thought it would be nice to be able to take a all in one vitamin. I've recently tried the ASD Plex made by Millinnium Nutritionals and so far I'm tolerating it okay. I'm hoping I will because it makes it a lot easier and I only have to add in a few extras. I use the powder because the capsules you have to take alot a day. The powder doesn't taste good, but since my oral sensitivity is gradually going away I can get it down sucessfully.

 

I've been on vitamins for 8 years. I don't know if I'll be on them for a lifetime or not. I hope not, but taking vitamins is much better than taking medications to treat your tics. I have pyroluria so I'm guessing that zinc, b6, and magnesium will probably be lifetime supplements.

 

Carolyn

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  • 10 months later...

I wanted to add in something about insurance and these lab tests. A lot of doctors seem to have you either send a check with the lab kit and then you file yourself or have the lab file insurance. I have a PPO DAN doctor, but he has the lab bill everything to his physician account and then he files to my insurance. I was really worried when he sent me home with test kits for RBC Elements, Fecal Metals, Urine Toxic Metals, Urine Amino Acids, Plasma Amino Acids, Comprehensive Stool Analysis, Organic Acids Test, Adrenocortex Stress Profile, and Essential & Metabolic Fatty Acids. However, the doctor's office filing insurance for these labs makes a huge difference, and I just found out for all of these tests together that I only have to pay about $459 on them. I just thought I'd let everyone know this. It's probably pretty hard to find a DAN doctor who is PPO, but it sure does make a difference for lab tests.

 

Carolyn

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