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Posted

We finally made it to the LLMD last week for DS7(PANDAS). I made appointments for all 3 boys since the other 2 have some symptoms, although nothing as major as DS7. We sent everyone's blood to IgeneX, but in the meantime the LLMD has made a clinical diagnosis of lyme, bart & babesia in all 3 of my boys. That's pretty overwhelming and maybe a bit of a relief too. I know the road ahead is going to be very bumpy, and emotionally, physically, and financially draining. But that's nothing new, and at least we know what direction to put our energies now.

Posted

I'm glad you have a doctor who is willing to support you. Despite the scary diagnosis, it must feel good to finally have someone willing to investigate and treat instead of telling you your kids are fine. Hopefully, the labs will support the clinical and give you guidance on next steps. Congratulations on your perseverance!

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