Neuroscience Lyme testing results are in. . . . . .

[butterflymom]

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Edited February 3, 2016 by butterflymom

[KarenF]

I see you did not get a response to your email. Was wondering if you have since learned more. I had this test done as well and mine said something a little different. My results are at the doctors. I will get it on Friday and can tell you. At least you'll know that they dont put the same thing in everyone's test. What I know is that their test is supposed to be cutting edge but then again a lot of doctors dont put much weight in their test either. so its very confusing.

 

We finally got results on the “My Lyme Immune I.D.” Comprehesive Test for my daughter. This test has three portions: an Immune Tolerance Test, Cytokine Test, and Western Blot. The report is 9 pages, and I’ve studied the online youtube videos about “My Lyme Immune ID” and tried to understand as best I can. I believe that lyme antigens are used in all three portions of the test to measure different responses in the blood sample.

 

Her results are:

 

ITT: Equivocal (3 out of 5 antigens came out equivocal)

 

Cytokines: Positive (Both her baseline and lyme reactive cytokines were very high)

 

Western Blot: Negative according to CDC standards (with IgG 41 Equivocal, and IgM 39 Reactive)

 

The end of the report says: “Elevated cytokines in the presence of equivocal T cell proliferation and negative Western Blot results suggest current infection with Borrelia burgdorferi that may be early or waning. Suboptimal PBMC function is a possibility, warranting further evaluation. Note: Results for this individual indicate elevations in baseline cytokines that may be associated with a state of generalized inflammation. High baseline cytokines complicate the definitive diagnosis of active Lyme infection based on cytokine responses to individual Borrelia antigens.”

 

 

 

I am still confused. We tried this test since my PANDAS son’s Igenex was not conclusive, and I can’t ignore the fact that my husband had lyme 20 years ago, and we have two PANDAS children. However it still doesn’t seem clear to me whether autoimmune inflammation or active infection is causing symptoms in my children. I’m getting really interested in co-infections, as I see more and more positive tests for Bartonella and other infections being reported. We haven’t tested co-infections yet.

 

If anyone has comparisons with results on this test for a PANDAS/Lyme child, or any opinion or understanding about it, I welcome any type of input.

[butterflymom]

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Edited October 5, 2015 by tampicc