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Posted (edited)

We saw the worsening of symptoms...and stayed there....for most of the time. Vocal tics we had not seen since last August came back. About 5 days ago they all stopped, totally. The OCD is still there. The wiping issue seems less. I don't recall it being an issue for a week or so. This week his mood is a bit better. OCD is still there, repeating phrases. Today he had a great day. He lost a classmate in his 2nd grade class this week. I was worried. He is handling it beautifully. Even compassionate. He was HAPPY today. He seems excited about things always. But today it seemed like he was just happy. without the extra jumping and all. He has swimmers ear and laid still to let the drops sit for the recommended time. He had a tough time with that last year, same issue, before he was diagnosed. Not reading anything into it. The last few days have been almost slightly pleasant.....We have the second IVIG scheduled for next week. I am looking forward to it.

Edited by lmkmip67
Posted

Sending you good thoughts-

we did our 2 IVIG's about 6-7 weeks apart, and after the 2nd one, right after, it was glorious. We also had rocky times after the 1st.

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