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Posted (edited)

How is PANDAS written into your child's IEP?

IPP (Regional Center help for non-school time).

What support or information do they give?

Thanks

Dave

 

I think lots of folks could chime in on IEPs. Does your child have an IEP already - or are you seeking an IEP for the first time?

 

I am not familiar with IPPs - Does your child have an IPP too?

Edited by kimballot
Posted

Our DS14's IEP is built around Otherwise Health Impaired (OHI). While the school has been informed of PANDAS and is accepting of it, the IEP is actually designed around the behaviors brought to bear by the PANDAS, rather than PANDAS itself. Our DS's primary behavior set is OCD, so most of the accommodations, interventions, etc. would be "classic" for addressing that condition. He also has a few that help contend with the autistic-like processing and behaviors that come into play during an exacerbation, such as keyboarding instead of handwriting for assignments, oral quizzes rather than written ones, and social work sessions for working on interpersonal skills with his peers.

 

The only really PANDAS-like pieces of the IEP is that each of the accommodations and/or interventions are identified to be utilized/applied "as needed," so when he's not in an exacerbatory period, no one is insistent that they continue to be applied. Also, the school nurse gives me a call when she's aware that there is "strep in the building," though the older he gets, the less the schools tend to be informed of kids having come down with it.

 

If you're interested in more the particulars, such as what exact accommodations were we able to arrange, let me know.

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