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Hi:

 

My son has pretty classic PANDAS in that he had Strep in conjunction with PANDAS symptoms many, many times prior to getting his tonsils removed last Aug. When we first went for help at CHOP last Sept., his Strep titers were very high but he tested neg. for Mycoplasma and Lyme. About 1 month after these tests, he had a tight chest and difficulty breathing. The Ped. gave him a nebulizer and said that he looked like he had "a touch of walking pneumonia". This week, he had titers taken again and I requested that they test for Mycoplasma/Lyme again. The report from the nurse was that he tested pos. for Mycoplasma "but it looked like it was a long time ago". SO, would this be impactful upon his PANDAS at this point in addition to the Strep still circulating in his system? He has had steady but 2 steps forward/1 step back improvement since being on antibiotics BID since last Sept. He is currently on Cefdinir. I took him off for 2.5 days last week because he had a really bad stomach bug. I could see a major PANDAS response pretty quickly, remeniscent of some of the acute symptoms from last Sept. He is improving once more now that the abx are back on board. What is the front line abx for micoplasma?

 

I appreciate any ideas/suggestions. I am a little shocked at the idea of yet another addition to the brew!

 

Thanks!

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