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Posted

Wow - thanks for sharing. While it may be too late to help our kids, good to know that our grandkids may have a better outlook. Have you shared with the Pandas board? I know a few parents who'd be happy to read this one.

Posted

Wow - thanks for sharing. While it may be too late to help our kids, good to know that our grandkids may have a better outlook. Have you shared with the Pandas board? I know a few parents who'd be happy to read this one.

 

 

Yep - that was my thought as well - too late for many here but perhaps the next generation will not have to endure this. I got pretty excited by this article from June 2010 "New Test May Simply and Rapidly Detect Lyme Disease" (http://www.sciencedaily.com/releases/2010/06/100618141631.htm) but have not seen anything yet. Sigh.

 

I'll post the link above to the PANDAS board.

 

bill

Posted

I went to a lyme symposium last weekend where they discussed efforts to create a reliable culture test - just like the culture tests used to diagnose strep. Back in the 80's, Alan MacDonald used to culture spirochetes in his lab (which was his basement). But he apparently never published how he made the culture and tinkered with it over the years. Subsequent efforts to develop a medium that allows spirochetes to be cultured have been elusive. Supposedly, a commercial test may be available within a year, but nothing specific could be shared. It would be a great breakthrough to end the controversy around chronic lyme. Not to be too cynical, but I'll get excited after it's real. So here's hoping...

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