A followup to the Biotoxin Pathway thread

[LNN]

Thanks everyone for the great conversation on the Biotoxin Pathway. As the ideas have cooked over the weekend, and I watched DS settle down considerably by focusing on controlling inflammation (aleve) and binding (charcoal) and drainage... I'm feeling much better with the theory that when we got aggressive with abx treatment. it resulted in a strong herx and his body couldn't detox fast enough (just did blood draw today for HLA DR4 and MSH). The resulting inflammation and toxins likely triggered a Pandas-like flair. Either or both are messing with his brain chemistry. It's unbelievable to watch how he changes 30 minutes after an aleve, just as it did all last summer while we weathered 10 horrible weeks post-IVIG.

 

So this has me wondering what to do if I'm right (lab results in 2-3 weeks, LLMD appt in 4 weeks). I'm guessing we'll focus on detox, maybe some heavy metals, things to clear drainage pathways. I will not resume tindamax as originally planned. Otherwise, it'll just clog the pipes even more.

 

My question is - while we down shift, is there a way to hold the enemy at bay? I mean, these are multiplying bacteria. If you lighten up, you give them a chance to regroup and repopulate. Do you think that keeping the "right" amount of abx in the system can keep the spirochetes in a cyst form (which they form in a hostile environment) but prevent too many from reverting into spirochete form where they can become active again? I assume cyst form doesn't reproduce and my understanding is that biofilms only release spirochetes at a certain stage of maturity (don't know if biofilms could be prevented from forming and/or releasing spirochetes if there were enough abx floating around).

 

So can you go into a holding pattern, using enough abx to keep the buggers dormant in cyst form, while the body detoxed/drained/healed. Then with a stronger body, go back to aggressive steps, such as cyst busting and then eventually biofilm busting...Does this make sense? Anyone have any thoughts? Obviously, I'll run this by our LLMD next month, but you all know I sleep better when I have a plan.