feel like I got punched in the stomach when I saw it again....

[eljomom]

Hi all,

 

Well, I'm doing my pre-Dr. L apt. freak-out. Basically, dd7 is mostly happy, sep. anxiety is much better, although lately starting to hang around a bit more...germ ocd is a bit better, but tics have changed. Now it's CONSTANT twisting her hair/rubbing hair, or picking her teeth. but honestly, i prefer that to the tongue thrust/mouth stretch/finger flick series.

 

But today at allergist for her brother, TV was on (I've tried to secretly limit it b/c tics always seemed worse during TV), and I was of course watching her, and then I saw it. I hadn't seen the tongue one for a month or two. And it made me feel like I just got punched in the stomach. Literally sick.

 

I am freaking b/c I don't know what to do at the apt. Is she severe? Not if you consider that she functions, enjoys life for the most part (with the exceptions of quirky things like I have to put on and tie the cletes because it doesn't feel right otherwise....wears same clothes day after day b/c they feel better....), etc.....but she has not stopped having tics/compulsions (sometimes hard to distinguish) since it all started over a year ago. On low doze zith over 5 months.....

 

afraid it's not bad enough for ivig, afraid of steroids, plus they seem to only be temporary.....ugh. sigh....

 

I'm afraid of doing nothing, but I"m afraid of doing anything more.

 

Don't even know what to ask for on wednesday..

[matis_mom]

Hi all,

 

Well, I'm doing my pre-Dr. L apt. freak-out. Basically, dd7 is mostly happy, sep. anxiety is much better, although lately starting to hang around a bit more...germ ocd is a bit better, but tics have changed. Now it's CONSTANT twisting her hair/rubbing hair, or picking her teeth. but honestly, i prefer that to the tongue thrust/mouth stretch/finger flick series.

 

But today at allergist for her brother, TV was on (I've tried to secretly limit it b/c tics always seemed worse during TV), and I was of course watching her, and then I saw it. I hadn't seen the tongue one for a month or two. And it made me feel like I just got punched in the stomach. Literally sick.

 

I am freaking b/c I don't know what to do at the apt. Is she severe? Not if you consider that she functions, enjoys life for the most part (with the exceptions of quirky things like I have to put on and tie the cletes because it doesn't feel right otherwise....wears same clothes day after day b/c they feel better....), etc.....but she has not stopped having tics/compulsions (sometimes hard to distinguish) since it all started over a year ago. On low doze zith over 5 months.....

 

afraid it's not bad enough for ivig, afraid of steroids, plus they seem to only be temporary.....ugh. sigh....

 

I'm afraid of doing nothing, but I"m afraid of doing anything more.

 

Don't even know what to ask for on wednesday..

So sorry about the tongue thing coming back... I keep going back to the same: do you think by any chance it could be strep(or something else) exposure? DS13 is been ramping up lately, I can't put a reason to it but I have the feeling someone must be brewing something...

Don't overthink it about tomorrow. Just state the facts and see what Dr. Latimer was to say.