too late to test for lyme?/Igenex questions

[eljomom]

Posted this on Lyme forum, but thought I'd post here too. WAnting to bury my head in the sand with the realization that out of my 4 kids, all have some ocd type behaviors now!!!!!!!!!! My ds12, who is constitutionally delayed (now in the 5th percentile for height, last year bone age was 2 years behind) bites his cheek, nails, and I saw him touching things with both hands recently. He said when he does something with one side, he has to do it with the other. My other three girls said they do the same thing. DD 14 bites her cheek, evens up when scratching, etc. DS 12, DD9 and DD7 all still wet the bed. I did till I was older too, but not as frequent. You all know about dd7.....

 

But dd9 has been a concern for a long time (you will read below why), and I'm just now wondering if there is a pandas link. Here's what I posted on Lyme forum:

 

"I am usually on the pandas forum regarding my dd7. She had a couple positive bands on Igenex, but was considered negative. One time I spoke with Dr. Harris (owner of Igenex) and he said he would not do further testing. A few months ago spoke with him again, and he suggested another western blot, co-infections, etc. Weird. First time I spoke to him he recommended a specific doc here in VA, saying "Dr. ______ knows his Lyme." Next conversation, I bring that docs name up and he says "not really sure he knows his Lyme." Anyhoooo.....I am just disillusioned about the whole Lyme thing.

 

Needless to say, another one of my kids (dd9) has had headaches for over 3 years. Her ped. dismisses it as migraines. This past well-check (where he said she has had headache complaints at her 6, 7, 8, & now 9 year well-checks, so it's likely not something really bad with her brain), he suggested trying some caffeine. Ugh. Anyhow, she also sometimes gets random chest pain, and is more prone to tummy aches. I always thought it was anxiety. She used to get separation anxiety pretty bad, and has an occasional transient tic (throat clearing), but also has some ocd-type stuff going on.....evening up when touching stuff. So, my husband, who is skeptic of pandas, ocd, lyme, etc. actually said the other day "Maybe we should test her for Lyme."

 

So my question is, having had this for over 3 years, would anything likely show up on a western blot???"

 

Thanks!