Anyone elses child with PANDAS have elevated TSH with Thyroid testing

[AmySLP]

My daughter has had an elevated TSH (which would mean hypothyroidism. WHen onset of this is after birth, this is considered/called autoimmune hypothyroidism. Anyone else have a problem with this in your PANDAS child?

 

Dr B tested for this and twice it's come back elevated. IS this part of his standard bloodwork-Have others who have seen him had this tested as well?

 

Thanks,

Amy

[kimballot]

My daughter has had an elevated TSH (which would mean hypothyroidism. WHen onset of this is after birth, this is considered/called autoimmune hypothyroidism. Anyone else have a problem with this in your PANDAS child?

 

Dr B tested for this and twice it's come back elevated. IS this part of his standard bloodwork-Have others who have seen him had this tested as well?

 

Thanks,

Amy

 

I think he does do TSH testing as part of his initial battery of tests. My non PANDAS daughter had elevated TSH, but TS4 and TS6 (do I have the right numbers) were normal range. He re tested a couple of months later (after a round of prednisone for sinusitis) and TSH was fine. We are keeping an eye on it in case it was autimmune and stopped with the prednisone.

 

When I researched her elevated TSH I did find that this can happen after mono (which she had a year ago) and also with lyme (she is not positive for lyme as far as I know).

 

Is he concerned about autimmune thyroid problems with your daughter?

[JJMom39]

There are blood tests that are used to specifically check for auto-immune hypothyroidism--they are anti-thyroglobulin antibody and anti-thyroid peroxidase antibodies (anti-TPO). Have you had these checked in your dd? If not that might give you more information to go on.

[AmySLP]

My daughter did have mono dx. on Jan 1, 2009. She tested positive on band 41 & 23 (i think that's the right #) on the WB, which we did not plan to pursue. My understanding is that these bands are often positive in non-lyme cases as well. My daughter also was negative on the T3 & T4 (or in normal range). I have a call in to Dr. B & an e-mail out to his nurses. Ugh! Just want to scream. Every bit of labwork shows some problem everytime. This was a repeat lab, as this number was high a few months back as well. My daughter has never been on a steroid.

 

JJmom-thanks for this info. I will be setting up a endocrinology appt ASAP.

 

Thanks so much,

as always I am so greatful for all the great info I have received on this forum for 2 years and counting (unfortunately),

 

Amy