For those who have done the Cunningham Test

[KaraM]

Hi,

 

I know there are a lot of former (and current) PANDAS people on here, so thought I should post here as well.

 

I just emailed Dr. C and Kahty Alvarez giving them a bit of an update on my dd9. When we did the test in March 2010, my dd had had positive strep blood tests, so we just assumed all the OCD, etc. was due to PANDAS. But my dd recently tested positive for Bartonella and may have Lyme as well. Even though they don't formally collect data after the fact, I thought Dr. C and her staff may be interested in the information in case the anecdoatel information would help them in deciding future research paths. So I sent an update.

 

Kathy Alvarez emailed me back shortly afterward thanking me for the update and saying they wished more people would keep them apprised of how their kids are doing. I told her I would post this request if she wanted me to (and she did). So, if you have done the test and want to let them know how your child is doing (and what they've done for treatment, etc), then send Kathy an email. Her email is:

 

Kathy-Alvarez@ouhsc.edu

 

Kara