EmersonAilidh Posted April 22, 2011 Report Posted April 22, 2011 Was feeling so good today I decided to go tan for the first time ever. Guess how well that went? After posting a FaceBook status about it my phone was blowing up with notifications but I wasn't checking them because I was relaxing. Go figure. Anyway, Linda was freaking out that I was in the sun & eventually my Mom got ahold of me & told me to get out. I looked it up on my phone, saw that it didn't seem to be that risky, & decided to stay out for ten more minutes since that was how much time I wanted anyway. As soon as I went to lay back down though my friend was like "What's on your face?" Oh. Nothing. Just a giant porphyria rash. Called five of my doctors, including my LLMD... Guess what? They're all out for Good Friday. Called Care Now & they don't give medical advice over the phone. There's also zilch about what to do for it on the internet. Do I use aloe vera or leave it alone or what? It burns & I feel really bad... :/ This was less than an hour ago. Picture doesn't do it justice. It's pretty bright.
sf_mom Posted April 22, 2011 Report Posted April 22, 2011 This looks similar to my twins rash on their face and LLMD thinks if from the Bartonella. One is positive via Igenex. When I've been in the sun while on antibiotics it looks like a very bright sun burn on face 'mostly my nose' and happens within 15 to 30 minutes. I try to remember the hat or sun screen but sometimes... I forget. Its happened 3 times already. -Wendy
EmersonAilidh Posted April 22, 2011 Author Report Posted April 22, 2011 I do have Bartonella & I get the same spiderweb rash as Amanda's girls. This isn't from that though. What did you do for it? I did use sunscreen even though I was tanning because I am as white as white gets & really prone to burning. Odd thing was that it popped up while I was lying on my back & not facing the sun.
sf_mom Posted April 22, 2011 Report Posted April 22, 2011 A big floppy hat that provides full shade is probably the best. It does zap me quick if I'm not careful. Sun screen didn't help me much either when out for longer periods.
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