Anyone in the Albany, NY area ever see the anyone in the pediatric inf

[AmySLP]

With hesistation, called Albany medical center's pediatric infectious disease docs to see if they treat Lyme & are familiar or at least believe in PANDAS. THey have no nurses, spoke with the receptionist who was adament that they treat PANDAS there. Of course, I questioned her up and down until she said I should have the pediatrician call. I was told 3 of there 9 doctors also treat Lyme. My pediatrician (who is a believer in PANDAS and all for long term ABX) is concerned about all the positives in the labwork-Myco P for my little one, Lyme on the Western Blot for both girls. HE feels that I should get a second opinion. He completely agrees that my 6.5 y/o has PANDAS. I tried to explain co-infections and that the panels of labwork being run by Dr. B are those that appear to be common to kids with PANDAS. He seems to think a infectious disease doctor should see my girls. I just can't bear a differing opinion. Reminded him that Allison has been seen by Dr Latimer and Dr Bouboulis with both confirming PANDAS & again with her strep history, does not dispute that. He also suggested maybe going back to her for another look at the labs and see what her recommendations are. Not sure what to do-

 

Has anyone gone to these docs on Albany? I guess you'll need to PM me if it's about docs specificaly.

 

Thanks, Amy

[laure]

PM'd you Amy.

[mama2alex]

Its my understanding that infectious disease doctors believe that Lyme is a rash and swollen knees only, and will not provide long-term abx if needed. I've also read stories on the PANDAS forum about ID docs giving moms a hard time about PANDAS. I think if your girls have a pos Lyme test, you should go straight to an ILADS-trained Lyme doc. Maybe someone else from NY can recommend a good one. Great to hear your ped is supportive, but now you need a specialist and I don't think an ID doc is your best bet.