Lyme Literate eye doctor - CT

[LNN]

Does anyone have the name of a lyme literate eye doctor in CT? I'm certain I got a referral last fall but when I contacted ILADS today, they said they don't have one. So I must've contacted one of the other organizations as well. Does anyone in New England have any opthomologist/optometrist among their doc names? I'll also ask our LLMD but thought I'd ask here first.

 

My DD6 had to start wearing glasses last spring for an astigmatism and she was nearsighted. Today we had a recheck (with a new doctor - last year's doc had the personality of burnt toast). Now she's moderately far sighted and her astigmatism seems to have rotated 90 degrees (not that I know what the heck I'm talking about). I started to ask the doctor but as soon as I pursed my lips to form the "l" word, I knew I'd sound crazy and would get dismissed. No one else in the immediate family needs glasses (aside from old age reading glasses). And now it seems her eyes have gone from near to far sighted. I'll ask the LLMD but would also like to talk to a lyme literate eye doctor.

[sf_mom]

That is the strangest!!!! I wonder if it will resolve with treatment.

 

I need a good dentist that understands Lyme as well in Northern CA.

 

-Wendy

[aidansmom]

I am sorry that I can't help but this makes me think of something I went through with my eyes.

 

2 years ago I started seeing more floaters than normal in one eye and it felt uncomfortable. A couple of days later it started looking like pink eye. I got in with a retinal specialist who saw where the infection was and that there was scar tissue there. Pretty cool pictures were I could see the retina and the damage from the infection. The Dr. said it was toxoplasmosis and that from the scar tissue I had had it previously and that it must have been dormant and had become active again. He did not do any blood test to confirm toxo. But he prescribed me 6 weeks of antibiotics - I can't remember what kind but I know it was not one of the really common kinds like amox or azith. Now, that we think my son has congenital Lyme I am wondering if it is possible that the eye thing was Lyme instead. Or that Lyme caused the toxo to be active. Or could I have passed on toxoplasmosis to my son causing some of these issues. I think the LLMD may have tested him for Toxoplasmosis.

 

I would love to get a hold of the retinal specialist I saw to see if he has ever heard of Lyme causing this kind of damage and I am curious what antibiotic I was on.

[NancyD]

Decline in vision and increased floaters were two of my recent herxes. It has since gone away. But, I did have serious retina problems in the mid to late 90s. Two detached retinas and lots of tearing and thinning. Had laser surgery on both eyes. Doctor said it was because I am very myopic (supposedly that puts you at risk) but I am now wondering if this was due to Lyme. I will discuss this with my retina specialist when I see him in two weeks.

 

Nancy

[LNN]

DD did complain of floaters last Dec. while we were trying to determine diagnosis. And I realize she just may have regular 'ol vision problems. But between her inability to articulate (she's 6) and the lack of understanding about lyme, even in CT, I just worry that the eye doctor could see an anomaly and dismiss it instead of connecting dots. Could just be me worrying about every little thing, but since the stakes could be high and life-long, I'd rather over-react than under-react. It's just driving me nuts that I can't find the name of the eye doctor. It stood out because when I was first looking for an LLMD and I got this eye doctor as one of my referrals, I thought it was really odd. That's what I get for cleaning out emails!

[lss]

DD did complain of floaters last Dec. while we were trying to determine diagnosis. And I realize she just may have regular 'ol vision problems. But between her inability to articulate (she's 6) and the lack of understanding about lyme, even in CT, I just worry that the eye doctor could see an anomaly and dismiss it instead of connecting dots. Could just be me worrying about every little thing, but since the stakes could be high and life-long, I'd rather over-react than under-react. It's just driving me nuts that I can't find the name of the eye doctor. It stood out because when I was first looking for an LLMD and I got this eye doctor as one of my referrals, I thought it was really odd. That's what I get for cleaning out emails!

 

 

Can"t help you with the name of a doctor, but can tell you that last year I had a huge change in my eye sight, was seeing floaters and also these streak of lights out of the corner of one eye. I went to 2 Optometrist and 2 different neurologist thinking I might have something more serious (brain tumor), they couldn't find anything! Since starting the lyme treatment, floaters have gotten better and so has the streaks of light have resolved, and I notice I don't need my "reader" glasses as often!