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Posted

Hi,

 

If there are any people on this board that have ever been on the OCD and Parenting Yahoo group, please take a moment to complete their survey. They are trying to see how best to meet their members' needs. PANDAS has been the subject of some contention in the past, so they ask several questions about it.

 

Here is a link. http://health.groups.yahoo.com/group/ocdandparenting/message/93322

 

This is really just if you've used that board in the past - it's not a "PANDAS research" survey.

 

That board is really how I got my initial information about PANDAS (thanks to people like LLM) and that led me here.

 

Thanks,

Kara

Posted

I completed the survey (nice job!). I had to bite my tongue and not fill up the comment boxes. Let me know if you're ever in a position to share the results.

Posted

I filled it out too. That's where I first learned about PANDAS. I haven't seen any contentious discussions about PANDAS, although I admittedly don't read it all the time. What's the problem?

Posted

I filled it out too. That's where I first learned about PANDAS. I haven't seen any contentious discussions about PANDAS, although I admittedly don't read it all the time. What's the problem?

 

Ironically, sort of the same thing that happens on the Pandas forum when lyme gets mentioned. Someone would join OCDP and say my 3 yr old suddenly has OCD - should I use prozac? and 5 people would jump in and discuss Pandas. Lots of the same information got repeated and the non-Pandas parents would feel like their forum was being taken over. You could understand the objections but it became polarizing. I stopped posting there and now only lurk once every blue moon. I don't know what prompted the survey - though I gather our little bird had something to do with it :)

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