Backing off all antibiotics today. Son is on toxic overload

[lismom]

I'm taking a day to just do detox and probiotics for my son. He is not doing well. Like really bad. Worst couple days yet. I am a bit overwhelmed today. I have been keeping it together but not today. I am not doing all the things that seem to be recomended for a really good recovery.

I am not doing a GFCF diet. We did that for a year in the past and son refuses. Can't blame him.

I am not incorporating any herbs that do sound like they are a good idea. No direction on that yet.

I am not giving probably the right amount of supplements I should because he reacts to so many. Tics flare.

 

I am overwhelmed and under supported professionaly at the moment. I don't think the Ped LLMD will be enough even though I do need a LLMD. There is only one Naturopathic Dr. here that is probably any good and I am not sure I can pay out of pocket any more. Feeling sad, Kathy

[LNN]

I'm taking a day to just do detox and probiotics for my son. He is not doing well. Like really bad. Worst couple days yet. I am a bit overwhelmed today. I have been keeping it together but not today. I am not doing all the things that seem to be recomended for a really good recovery.

I am not doing a GFCF diet. We did that for a year in the past and son refuses. Can't blame him.

I am not incorporating any herbs that do sound like they are a good idea. No direction on that yet.

I am not giving probably the right amount of supplements I should because he reacts to so many. Tics flare.

 

I am overwhelmed and under supported professionaly at the moment. I don't think the Ped LLMD will be enough even though I do need a LLMD. There is only one Naturopathic Dr. here that is probably any good and I am not sure I can pay out of pocket any more. Feeling sad, Kathy

Ok, the instruction manual the hospital gave you when your son was born - the one that told you how to do all this stuff - did you lose it? If so, you have every right to be down on yourself. If you didn't get an instruction manual, then you're no more of a bad parent than the rest of us.

 

I hear you on the overwhelmed feeling. I was there last Friday. Thankfully, starting milk thistle took things down to a manageable level again. But it's easy to feel like you've been run over by a freight train.

 

We do not do a GFCF diet - would never happen in my house. DH and kids would sooner starve (or sneak out to McDs) then give that one a try. I personally wouldn't experiment with herbs on your own - they interact and change balances and I think you can do more harm unless you know what you're doing with them. Same with the supplements. They're not harmless candies. People take them because they're supposed to change things in the body. Someone who's treating the patient is, IMO, the one who should be guiding you. So I think it's good you're considering a professional and not doing a lot on your own, at least not before doing a great deal of research on each one.

 

That said, I also understand the cash hemorrhage. None of this stuff is cheap. So you do what you can and focus on baby steps. Prioritize what works, what you can afford, what gives you the most bang for the buck, what's covered by insurance, etc...Then do the stuff you can and try not to beat yourself up over the rest. You are not super human. You are doing your best. And while that may not feel like enough some days, it probably is. We all have warts, we all fail sometimes, we all have regrets. But you just keep moving forward and loving your child.

[lismom]

I'm taking a day to just do detox and probiotics for my son. He is not doing well. Like really bad. Worst couple days yet. I am a bit overwhelmed today. I have been keeping it together but not today. I am not doing all the things that seem to be recomended for a really good recovery.

I am not doing a GFCF diet. We did that for a year in the past and son refuses. Can't blame him.

I am not incorporating any herbs that do sound like they are a good idea. No direction on that yet.

I am not giving probably the right amount of supplements I should because he reacts to so many. Tics flare.

 

I am overwhelmed and under supported professionaly at the moment. I don't think the Ped LLMD will be enough even though I do need a LLMD. There is only one Naturopathic Dr. here that is probably any good and I am not sure I can pay out of pocket any more. Feeling sad, Kathy

Ok, the instruction manual the hospital gave you when your son was born - the one that told you how to do all this stuff - did you lose it? If so, you have every right to be down on yourself. If you didn't get an instruction manual, then you're no more of a bad parent than the rest of us.

 

I hear you on the overwhelmed feeling. I was there last Friday. Thankfully, starting milk thistle took things down to a manageable level again. But it's easy to feel like you've been run over by a freight train.

 

We do not do a GFCF diet - would never happen in my house. DH and kids would sooner starve (or sneak out to McDs) then give that one a try. I personally wouldn't experiment with herbs on your own - they interact and change balances and I think you can do more harm unless you know what you're doing with them. Same with the supplements. They're not harmless candies. People take them because they're supposed to change things in the body. Someone who's treating the patient is, IMO, the one who should be guiding you. So I think it's good you're considering a professional and not doing a lot on your own, at least not before doing a great deal of research on each one.

 

That said, I also understand the cash hemorrhage. None of this stuff is cheap. So you do what you can and focus on baby steps. Prioritize what works, what you can afford, what gives you the most bang for the buck, what's covered by insurance, etc...Then do the stuff you can and try not to beat yourself up over the rest. You are not super human. You are doing your best. And while that may not feel like enough some days, it probably is. We all have warts, we all fail sometimes, we all have regrets. But you just keep moving forward and loving your child.

 

Thanks. I appreciate it. Do you work with just one Dr. or more?

[LNN]

We work with just one doctor at the moment - tho due to our previous Pandas journey, we've seen a number of doctors leading up to this point (I feel like I should have their business cards sewn onto a sash, like girl scouts sew on merit badges).

 

Our LLMD uses abx and then augments with herbs, if that's your leaning, or he'll try an all naturals approach if that's your preference. He's pretty pragmatic, especially when dealing with kids and their crazy parents (like me). He's big on detox, which has helped my DS immensely.