What info do you share with "regular" doctors?

[FallingApart]

Hi there,

 

I am meeting with a new OBGYN today. I've never met her, but our naturopath recommended her, so she is likely somewhat open to "things". However, she is an MD. When I fill out the new patient form, do you think I should include the Lyme stuff? I'm not sure I really want to get into this with her, esp on the first visit. Knowing that she isn't going to give me drugs, is there any reason to tell her about it. For the past 5 years, my crazy neuro issues have taken the spotlight of every doctor's visit I've had. So much so that I don't even have a GP right now. I think this is why I'm hesitant to share this.

 

What have you all been doing?

[smartyjones]

is your naturopath treating you for lyme? if she recommended her, i think it will be in your favor.

 

we had a bad early experience with ds6's pandas onset. pediatrician wasn't so helpful altho ran tests and threw him on a perfunctory 5 day course of azith. actually scolded me and told me i couldn't see the naturopath and them b/c it "was just too confusing for everyone". needless to say - that was at our last visit.

 

our current ped is a traditional MD. he is from India where homeopathy is part of the MD curriculum. his mother was into homeopathy. he has taken a more traditional route but supports my decisions to explore options. he states he will give his opinions and observations from what he sees through his lense of medicine. recently when ds9 showed symptoms, i took him to our integrative MD that ds6 and i see. he diagnosed TBI. i asked ped to run blood tests based on that -- he complied. all were negative, ped said he is satisfied no TBI. that's fine -- his opinion. i like to have the opinions and then make a choice.

 

ds9 is having exercise induced asthma issues and shows anemia results. traditional ped would treat as such. he referred us to a cardiologist based on EKG results. i stated to cardio, "integrative MD believes him to have lyme, bartonella, babesia. blood tests were negative. anti- dnase B in Oct was elevated." for cardio, it was important b/c if he did find heart issues, it's important that TBI and strep are discussed. the cardio consult was normal, so there wasn't further discussion. he sent a copy of his eval to us. it's written in the history just as i stated it. i am glad it's all included. there wasn't so much a need for discussion about it b/c we weren't there for him to do anything about it -- we were there for him to evaluate his heart. even if the consult wasn't normal, i don't know that it would have matter b/c they would suggest treatment for the heart not related to TBI. although, integrative MD believes it to be related and we are hopeful it will resolve with treatment.

 

long story short -- i think you should include it esp b/c you are not there for her to do anything about it. you're there for GYN, right? so TBI is part of your history -- just like my kids paternal grandfather's early heart attack, even though he's a heavy smoker and drinker .

 

in the past, were you looking for help for your "crazy neuro issues"? sounds as if you now have it and don't need it from this dr. i'd include it as part of your history and say you're being treated from this other dr and move on to what you are there for in her specialty.

 

i do like to phrase it as above so it's an opinion from a dr we are in the care of.

[FallingApart]

Like most of you (I'm guessing) we have multiple doctors. Our LLMD is an ND, but before we found her, we were also with a an ND. So we are actually seeing 2. The general ND is who recommended the OBGYN. THe reason the neuro issues overshadow every appt is because they came on 4 days before I deliverd my PANDAS/Lyme daughter. All MDs think this is fascinating and spend about 4 appts trying to "fix" me until they realize they can't. Hence, why I don't want to bring it up at all. But since this is the OBGYN and my symptoms all started during pregnancy-I would have to fully just leave that part out.

 

I like the way you stated it. I just don't want this to turn into a discussion of my having a bunk disease that is being treated incorrectly. I'm a bit tired of that. I really don't mean to sound so negative at all. I'm actually feeling hopeful for the first time in a long time. I'm hoping you all know what I mean...

[matis_mom]

Hi there,

 

I am meeting with a new OBGYN today. I've never met her, but our naturopath recommended her, so she is likely somewhat open to "things". However, she is an MD. When I fill out the new patient form, do you think I should include the Lyme stuff? I'm not sure I really want to get into this with her, esp on the first visit. Knowing that she isn't going to give me drugs, is there any reason to tell her about it. For the past 5 years, my crazy neuro issues have taken the spotlight of every doctor's visit I've had. So much so that I don't even have a GP right now. I think this is why I'm hesitant to share this.

 

What have you all been doing?

Unfortunatelly I think a lot of MDs will just put the "wacko" label right on your forehead once you mention Lyme. Sad, but true. I would hold off unless something comes up and you think she needs to be informed.

[Suzan]

Unfortunatelly I think a lot of MDs will just put the "wacko" label right on your forehead once you mention Lyme. Sad, but true. I would hold off unless something comes up and you think she needs to be informed.

 

I even got this type of response when I went to see an integrative doctor recently. I thought for sure she would be supportive but she slapped the CDC/infections disease stuff on me right away.

 

If you get a good feeling from her, maybe you could just tell her you are being treated for lyme but otherwise, if she does not need to know for medication cross reaction reasons, maybe feel her out some more.

 

I have to tell my primary doc the next time I see him I think and I am not looking forward to that. I'm putting off seeing him as long as I can.

 

Susan