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Posted

I am planning to call Dr. Latimer's office early this week and was wondering if anyone has tried to make a new appointment recently and knows if she is accepting new patients yet. TIA!!

Posted

I am really not sure on that. Let us know after you call. Just curious...are you not satisfied with your PANDAS/Immunologist doc? (trying not to name names)

Posted (edited)

;) It's not really that so much as the distance is very far for such regular visits. He will remain on the team regardless of the distance though. Also, I just believe that the more docs we have looking at this and working with us, the better, given that her case has been so severe.

 

The one I am not too happy with, is the Neurologist we have seen locally, who has been on the fence about PANDAS/PITAND and is just starting to maybe come around but clearly not up to speed. I just don't have it in me anymore to educate the docs - she needs help NOW and we need someone who can deliver on that... edited to add that I especially want her to look over the meds the neuro here has her taking as I've been reading more lately about problems with them taking psych meds while doing hd IVIG - and she has other medical conditions - word is still out on some of the co-infections, but her LFT & prophyrins are back to normal, thank God!! :)

 

I'll try to post after I call... things have been rough here lately. She is improving ... excruciatingly slowly... I'm just the one who is completely drained and stressed lately.

Edited by browneyesmom
Posted

Called yesterday - I was told she is not accepting new patients. I pressed... mentioned I thought others had been in to see her recently as new patients and was told that she will sometimes take cases in the area if their regular doc is someone she knows and they call to get them in to see her.

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