chronic infection lyme and pandas

[norcalmom]

hi all-

 

I dont' know if we have critical mass enough to do this on the board, but I'm trying to see if there is anything that distinguishes lyme/chronic infection kids from those that don't have any infections.

 

Granted, most of us can't prove we don't have any...and that is the point of the survey. Its for those of us that have scant information. So, how to treat it - treat just the post infectious immune disorder? Or treat for chronic infection as well (or instead).

 

Are there any distinguishing features? Thats what I'm trying to find out.

 

so, if any of you that know you have lyme, can take a moment of time to read my last post on the pandas/pitand page and respond, I'd appreciate it. Maybe there is no difference, but that tells us something too.

 

Also, please add in any other symptoms that are not listed there. Only pandas symptoms are on the list. I did not include joint pain or fatigue or more typical lyme things (don't know what they are). But maybe I will soon - I just started my provocation test today so who knows...I only want to vomit from all the meds so far.

 

Right now I'm looking at both another ivig as well as more heavy duty antibiotics. I feel good about neither. I'd like to avoid at least one, but I will not let DS slip back to where he was prior to first ivig, and I know that worked for him. He has self harming behaviors, so I don't really have the option of waiting to if antibiotics will work, or making it worse with a herx...rock and a hard place.

 

Thank you!!!