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Posted

Dr. B update ... no labs are back for any of us. Part one of infusion today went fine. Sorry I'm too drained to.update.more & am limited to using my phone right now. I know I never posted a good update of our first visit to Dr. B last month. There is a lot more info.on my blog if anyone is following her case or interested... feel free to subscribe for notifications of updates. Link is in my siggy here. :)

Very tired, hope I can get her to sleep soon.

Posted (edited)

We got home very late last night and went to sleep rather quickly. She looked rough after the infusion as the day wore on, but this morning, is reporting that she feels better again, just as after the other infusions - she says she feels "more like herself". Also, sore throat is gone!!! Yayyyy!!!! I can't tell you how long this child has had a sore throat from these infections! Ugh! It leaves again after every IVIG infusion. Slight headache, but she always has one. Nausea gone this morning... we'll see how the day goes. Lack of sleep for us to make the trip itself contributes to it being just hard for the days surrounding it, but this improves with rest and the benefits are clearly worth it in her case!

 

Updated blog - link is in my siggy - off to pick up an Rx Dr. B's nurses called in for her & another we need to fill.

 

Got to visit Whole Foods again and stock up on supplies - yay!! I'll be working on creating safe new recipes for her; I've already altered lots of them due to her Reactive Hypoglycemia, so this will be a good, new challenge to remove gluten and casein... we'll see how it goes over for her... ;)

Edited by browneyesmom

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