Supplements for inflammation or immune system help?

[JJMom39]

I had a conversation with my acupuncturist today about PANDAS. Although she had heard of PANDAS, she does not know more than the name. She does, however, know a lot about supplements, and she was wondering if any of the following are used in PANDAS for inflammation:

 

boswellia (an Ayurvedic herb) anti-inflammatory

GLA (found in Evening Primrose Oil, but you can buy GLA extract which she said is better) also anti-inflammatory and a powerful antioxidant

 

She was also wondering about the use of hyperbaric oxygen for PANDAS. She is from the UK, and there MS, chronic fatigue syndrome, and other inflammatory conditions are standardly treated with hyperbaric chambers. Is anyone familiar with this?

 

Also, I believe I read a post here from someone whose child (an older teen I think?) was taking low-dose Naltrexone for the immune system. I am very curious about this. I have been on LDN for the last few years for PMS (can't begin to explain why it helps but it does) and am wondering if it can be used for younger children, and how often it is used for PANDAS. I know there is a web site for LDN. Has anyone tried it for PANDAS?

[AmberM]

We did 80 hrs of hard chamber hyperbarics with my then 2yr old daughter. We did it before she was dx'd with PANDAS and we did see quite a few gains. I'm hoping to try it again after we get some IVIG under our belt.

 

Our pedi gave us an rx for LDN but we haven't started it yet because my dd's sleep pattern is so bad that I'm afraid she'll wake when I apply the cream at night. She's 3yrs old and I know of several other young children using it.

 

We also use curcumin for inflammation. It seems to really help my dd. The brand we use is Longvida.

[JJMom39]

We did 80 hrs of hard chamber hyperbarics with my then 2yr old daughter. We did it before she was dx'd with PANDAS and we did see quite a few gains. I'm hoping to try it again after we get some IVIG under our belt.

 

Our pedi gave us an rx for LDN but we haven't started it yet because my dd's sleep pattern is so bad that I'm afraid she'll wake when I apply the cream at night. She's 3yrs old and I know of several other young children using it.

 

We also use curcumin for inflammation. It seems to really help my dd. The brand we use is Longvida.

 

Thank you for the info/input. I am going to look into LDN for my ds. We are using the Enhansa brand of curcumin. My ds has only been on it for 6 days so it's too soon to tell.