Symptoms worse after starting abx

[eljomom]

Is there a way to test for staph underlying infection??

 

 

You have received a lot of great information from the others! Welcome to the forum! I am sorry that you have to be here but when that is the case, it is a great place to be for information and support. I know how confused and alone one can feel at first.

 

I just wanted to mention that I noticed your son had a staph infection. One of my sons (I have several with this condition) really goes down hill from staph. One of his biggest 'crashes' was following a staph infection so that may very well be a contributing factor for your son's flare in symptoms also. Here the crash always occurs after the infection.

 

I, like others, have also been down the PANDAS only trail. In the end I found my children suffer from multiple chronic infections including Lyme. I wish people had recommended that I rule that out when we started our journey into this complicated world.

 

My children all run high strep titers so I though it was just strep. I was wrong. The others are right that it is best to identify the enemy as best you can and go into full out battle to get your child better!

 

The good news is that with proper treatment you can get your child back! The road is not always easy but there is hope!

 

Hang in there!

[JJMom39]

Sorry, also wanted to add:

Enhansa itself can cause serious die off in some kids- that is why it is best to go very slowly with it-

Did you start both at the same time? Then it's hard to tell what is what.

Here is Enhansa fact sheet, where it talks about die off:

http://www.leesilsby.com/enhansa.php

 

HTH.

I read the fact sheet before we started the Enhansa and was wondering if die-off was at least part of the issue with symptoms flaring up. We did start the Omnicef and the Enhansa at the same time. Initially my son was on one Enhansa per day. We did that for four days; yesterday we went up to three and today up to four. His dr. wanted to make sure he could swallow the pills before she raised him to the full dose of four per day. I was concerned that going up that quickly might be an issue, but she wants to address the inflammation right away. You mentioned your daughter used to be on Enhansa and that you had good results. What types of things improved?

[JJMom39]

You have received a lot of great information from the others! Welcome to the forum! I am sorry that you have to be here but when that is the case, it is a great place to be for information and support. I know how confused and alone one can feel at first.

 

I just wanted to mention that I noticed your son had a staph infection. One of my sons (I have several with this condition) really goes down hill from staph. One of his biggest 'crashes' was following a staph infection so that may very well be a contributing factor for your son's flare in symptoms also. Here the crash always occurs after the infection.

 

I, like others, have also been down the PANDAS only trail. In the end I found my children suffer from multiple chronic infections including Lyme. I wish people had recommended that I rule that out when we started our journey into this complicated world.

 

My children all run high strep titers so I though it was just strep. I was wrong. The others are right that it is best to identify the enemy as best you can and go into full out battle to get your child better!

 

The good news is that with proper treatment you can get your child back! The road is not always easy but there is hope!

 

Hang in there!

Very interesting about staph infection causing issues for your son. I was wondering if that could have anything to do with what we are dealing with, but ruled it out because I had no idea staph could cause a problem. My son had a nasty little infection around his fingernail but it cleared quickly, or at least I thought it did. Again, so much to learn!

[SSS]

Hi- I have been doing bio-medical with my dd5 for about 1 1/2 - 2 years now..started GFCF diet, saw some improvement, and she became nutrionally sound- variety and healthy diet.

Tried different things throughout, many, many things made no difference or had a worsening effect, quickly pulled.

She had stomach issues (yeast overgrowth) and I thought Enhansa might be a good idea for more healing- (did NOT know about PANDAS)

I started her slow- just like the instructions it comes with- waiting the proper time for increasing slowly the dosage- what I saw:

Increase in talking, better conversations (my dd5 does not have any language delays, not autistic, but has always been wracked with anxiety.) She was more outgoing, my painfully 'shy' girl at the time.

Better, regular like clockwork, normal bowel movements (less inflammation in her gut, she has always run constipated)

When we got to the highest dose, I also added extra vitamin C - I got a huge viral pull out of her body- a chicken pox rash (no kidding) started on her torso, and it took 4 weeks as it worked itself down her entire body- I kept her on the Enhansa high dose throughout, my thinking I want this viral whatever to come all the way out-- when the pox cleared and left after 4 weeks, I ramped back down the dosage for a few weeks, and then pulled her off.

I feel my daughter has had untreated PANDAS for years- that has influenced what we 'see' with other supplements--how she is, really.

I recently bought more Enhansa- I plan to use it again with her sometime- but right now, we are heading to our 1st IVIG- maybe 3 or so months after that, I will introduce it again.

 

From my research on it, and testimonies, it is either a big Wow for some (I felt it was for us, the biggest, after Azithromycin and ibuprofen) or, not.

[JJMom39]

Thanks for your testimony on Enhansa. My fingers are crossed it will make an impact for my son. We are only 7 days on Enhansa and only 1 of those has been at the highest dose. I'm sure it's too soon to be seeing anything so I'm trying to be patient. We had a day without mini rage outbursts, but now he is hyper (so not him) and sometimes non-responsive. I know he hears me, he's just not responding. And he's in la-la land some of the time also. These things are scaring me.

[pollywog]

Hi,

 

I just wanted to add that both my kids went absolutely crazy with Enhansa. It's possible that it was die off, and that we were going to quickly, but our DAN doctor also said that Enhansa is highly phenolic, and so if your child is sensitive to phenols, you could see big negatives. I had to stop the enhansa with my two kids...too scary.

 

Paula

 

 

You have received a lot of great information from the others! Welcome to the forum! I am sorry that you have to be here but when that is the case, it is a great place to be for information and support. I know how confused and alone one can feel at first.

 

I just wanted to mention that I noticed your son had a staph infection. One of my sons (I have several with this condition) really goes down hill from staph. One of his biggest 'crashes' was following a staph infection so that may very well be a contributing factor for your son's flare in symptoms also. Here the crash always occurs after the infection.

 

I, like others, have also been down the PANDAS only trail. In the end I found my children suffer from multiple chronic infections including Lyme. I wish people had recommended that I rule that out when we started our journey into this complicated world.

 

My children all run high strep titers so I though it was just strep. I was wrong. The others are right that it is best to identify the enemy as best you can and go into full out battle to get your child better!

 

The good news is that with proper treatment you can get your child back! The road is not always easy but there is hope!

 

Hang in there!

[sf_mom]

sometimes non-responsive. I know he hears me, he's just not responding.

 

It could be absence seizures. Here is what they look like.