"Wellness" check.

[EmersonAilidh]

Haven't been to my pediatrician for anything but strep tests in so long they still had Sydenham's Chorea on my file, hahaha. The well check (because apparently they still do those at sixteen years old...) was with the same nurse practitioner who gave me antibiotics for the "strep" that came back negative on both the rapid test & the culture. She said today that she had literally no idea what it could have been but strep. We talked for a long, long time & she updated my file. She knew about P.A.N.D.A.S.. Said she "hadn't seen it in a while", but did believe in it. She used to work at Texas Children's down in Houston, where they tend to diagnose all sorts of crazy stuff at the drop of a hat, so she's openminded.

 

She completely supported the Lyme & P.A.N.D.A.S. diagnoses (although she admitted she was inexperienced) but didn't think that it ended there. She gave me referrals to my first ENT & my first geneticist. The ENT because she was just dumbfounded as to what was going on in my throat & thought something is wrong with my adenoids, & the geneticist because of all the problems that run in my family (especially the ones in my siblings, some of which I wrote about in the Cholestasis post). I'm also seeing a new neurologist soon (thanks TexasDad!) & hopefully squeezing an appointment with Dr. Rao in before I set off for the LLMD in Colorado on March 3rd.

I'm also really, really needing a psychiatrist right about now... but I'm just so wary of therapists. Yes, I AM crazy! But I'm sick too! Agh. -___- Hopefully we'll find a good one soon? Just a little update.

[lynn]

Glad you're getting some traction Emerson! My DS15 is seeing a cognitive behavioral therapist and he says that even more than the tools that he will hopefully be developing against OCD is the fact that the therapist absolutely knows what he is talking about and understands what he is going through. Don't know if you are needing a CBT, but that might anyway be a fruitful direction to look in for a therapist.

 

Best of luck with your appointments!