PANDAS Awareness Ribbon silly bands

[browneyesmom]

I'm sorry I have not been posting very much here lately, other than the updates about the Awareness Ribbon. Christine remains in exacerbation and between that, doc appts, labs, trips to Dr. B, coordinating communication between the docs, and getting this PANDAS Awareness Ribbon in print to raise funds for research, honestly, I'm drained and my house is a wreck. Ugh... but, I'll get back to that later... for now... I have another update on fund-raising with the ribbon...

 

I just ordered 1000 green PANDAS Awareness Ribbon Silly bands... it was Christine's idea... they will be used to raise awareness and fund research for this disease. ♥

 

It will take 3-5 weeks for them to make them and then they will ship them to me for orders. I will probably also create an informational card to be tucked inside each packet that kids (and adults) can hand out with them. I'm very excited about this project and raising funds for research to help our children!!

 

I need to ask you guys a question. I do not intend to make any profit off these ribbons... all funds go to support research for this syndrome/disorder... whatever we are calling it these days. I realize many of us are strapped financially... what price would you folks pay for a pack of 10 (with 10 info cards included in the packs)?

[browneyesmom]

Also... was thinking I would do something similar to Dr. B's card, where he has "know the signs" on the back... I need to check with him for permission about that.

 

I also want input from you other PANDAS parents... what do we want to see on this card? Please remember that THIS card will likely be given out to other kids, so I want to be sensitive to our PANDAS children's feelings, yet information to others. I plan to list them something like... "Symptoms may include... " to sort of allow an "out" for some of the more embarrassing ones, yet also have them posted for those who may know children with the condition - so they can get the help they need.

 

Please give me your input on what you would like included... Thanks - you're the best!!!!

[browneyesmom]

Still working on the other items (t-shirts, magnets, buttons, bumper stickers, etc.) that will have the actual image on them - probably through Cafe Press and people can order what they want of those. The ribbons always have to be ordered in bulk for best pricing, which I want, for research fund-raising reasons.