lynn Posted February 12, 2011 Report Posted February 12, 2011 Another thing that I am trying is an ERP intensive. Right now Fordham is doing a clinical trial on a one week intensive ERP for OCD kids. The control is that you have to wait a month between the initial evaluation and the therapy trial. The therapy consists of on hour therapy sessions per day for a week. We are doing it during winter break (President's Day.) They can also arrange it so the child gets a session at 7 am, goes to school, then comes back for the second session after school (this would give me an anxiety attack.) They also do the initial evaluation by Skype so if you lived far away you would only have to come for the therapy, not the initial evaluation. The Skype thing was interesting. It is apparently also given in Tampa and the Mayo Clinic. I'll post about how it goes. The Fordham trial link is here: http://clinicaltrials.gov/ct2/show/NCT01194076
dcmom Posted February 12, 2011 Report Posted February 12, 2011 Hhhhmmm interesting. We could get to Fordham. Have you discussed with them - what if pandas is the diagnosis?
MomWithOCDSon Posted February 12, 2011 Report Posted February 12, 2011 I remember reading about this in the IOCDF newsletter. I believe Eric Storch is one of the trial leaders, and he works closely with Dr. Tanya Murphy in Tampa/St. Pete. Those folks down there definitely know PANDAS. Since you can Skype the sessions, too, if Fordham is not open to PANDAS diagnoses, I'm betting USF (Storch) would be.
lynn Posted February 12, 2011 Author Report Posted February 12, 2011 We were pretty upfront with them on the PANDAS stuff, didn't seem to bother them. Their feeling was that antibiotics have been pretty stable for 8 weeks (their criteria for drugs) and he has OCD, so fine.
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