herx reactions to treatment changes

[smartyjones]

i posted this on lyme board also b/c that's where it's discussed more but in case anyone here that doesn't visit that board has thoughts on reactions to treatment changes. . .

for those who have seen multiple herx when you change treatment. . . do you see the same behaviors/issues each time or totally different things? do you see the same intensity, less or various?

 

ds had a treatment change about 3 weeks ago. saw improvements first week. second week, some mild hand/arm to mouth wiping. i don't think it's a tic, i think it's an ocd issue. this week, some questions about expiration dates, some random not eating. seems mild but he had a horrible herx reaction with severe food issues and refusal during the summer that was too close to dangerous for comfort. perhaps i too neurotic but certainly do not want to see that again.

 

today is eerily cooperative and pleasant. no mouth wiping. ate a favorite z-bar that yesterday he spit out b/c was bumpy. i remember a day or two of me using those same words before severe storm of ocd contamination.

 

thanks.

[Megs_Mom]

Hey Smarty - i am so sorry he is still going through this. Our dd's OCD did change over time, but some things are always the early warning things for us. Most of the time, they stay at that low level & just blip. Food and contamination is always the scariest & are our earliest sign - also checking expiration, checking food for "spots", things tasting "off", and so on. We had a spit & wipe thing that got very severe, but our daughter communicates very openly (we were lucky, I guess that is odd to say), and it was clearly not a tic, but was contamination based. It was so frequent that it became a habit as well as a compusion, so we did use habit reversal therapy as well as ERP.

 

I'm glad that today is going well, and hope it is a sign of great things to come. Sorry that I don't know much about herxing. But I so admire you and your quest to help your son.

 

All my best -