Guest pandas16 Posted January 22, 2011 Report Posted January 22, 2011 (edited) For those of you who had PEX- How many transfusions did you have & how long did it take for you to see results? I heard that the results from PEX should be very fast if it is done correctly. Was your child more or less cured? Edited January 22, 2011 by pandas16
dcmom Posted January 22, 2011 Report Posted January 22, 2011 Three rounds of pheresis in 4 days for my 2 kids. We saw immediate results, one 110%, the other 90%. These results lasted until the next trigger. Not a cure in our case, but a great and quick way to get to baseline.
Guest pandas16 Posted January 22, 2011 Report Posted January 22, 2011 (edited) Thank you for answering. Do you mind me asking what the next trigger was? Was is strep? Edited January 22, 2011 by pandas16
dcmom Posted January 22, 2011 Report Posted January 22, 2011 No more strep - triggers were H1N1 and cld/virus
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