IVIG Study Listed!

[VickyLH]

Just curious, I understand that there are children who require more than one or two IVIGs. Do you think being enrolled in this study would limit the treatment options for children who don't respond well to IVIG or who may need more in the future? It seems children also respond differently to various Abx's, so I also wonder if that would potentially limit the treatment. I suppose this is a question I need to ask them directly. I e-mailed them yesterday and am eagerly waiting to find out if my son will be considered. We're just so new to all of this and I have no idea about how my son will respond to various treatments.

 

Thanks

Vicky

[Megs_Mom]

I think the results will be important but more research on a lot of questions is needed. I don't think the results from this study will hamper that. You ask great questions

[thereishope]

Just bumping this up for those that didn't see it over the weekend.

[ma2ar2rm2]

I emailed but then thought a call might be better, So I called and they took information and then gave me a number for a Dr Grant to call him, So I did and left a voice message, that was like around noon today and at 3pm today they called me back and did a phone screening.. They are not sure if my dd will quilify because of her 1st major PANDAS being in May 2010 but the fact that she was doing really well and now after myself and my older son tested Pos for Strep on Jan 7, 2011 and DD is in a flare now again, they were going to run this by the doctors doing the study.

They did ask about the pen allergy, and I did have to tell them that I am allergic to it, but they didn't say NO.

They said they will get back with me, when they are more orgainized that they are just getting this underway and they need to get more information. So I guess we wait and see.