butterflymom Posted February 28, 2011 Report Posted February 28, 2011 (edited) = Edited February 3, 2016 by tampicc
Guest TwinCitiesMom Posted February 28, 2011 Report Posted February 28, 2011 I sent videos of my son to Diana for that meeting. She had told me it had taken place, and that PANDAS experts were trying to discuss with other neurologists how these mvts manifest in PANDAS kids. They are apparently going to meet again some time to study and discuss more. I think they are trying to develop some criteria, or see if there are similarities or differences in PANDAS mvts and those in tourettes and sydenham's chorea. The last PANDAS network newsletter had a call out for those videos, so that's how I decided to send them to her. We provided a video of our son as well. Would like to know how things are progressing "criteria-wise."
rockytop Posted February 28, 2011 Report Posted February 28, 2011 I sent one also-- if anybody hears more on that- passs it on please!!
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