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Posted

What does this mean?

I have just started the ball rolling down the LYME path.

PANDAS for 3 years.

did not do IGENEX testing yet started with CLINICAL PATH LAB WESTERN BLOT

I tested myself and my daughters (PANDAS, or so we thought)

MY test came back

negative but bands present are: 58,41,30,18

1 Daughter only band 41 present with low CD57 number

2 daughter only band 41 present with CD 57 number

 

WE ALL HAVE HIGH STREP TITERS AND CANNOT GET RID OF THEM ON ANTIBIOTICS

 

help if you have any idea what all this means.

P.S. I live in NON TREATING LYME STATE.

Posted

I believe your results warrant further investigation inclusive of provocation and retesting via Igenex. Do you have any symptoms?

 

My children were band 41 positive only via Igenex (which is a double starred band and additional testing is recommended) and did not unravel lyme until further DNA testing was done. With clinical symptoms, inability to eradicate strep, low CD57...... I think you really need to move forward with further testing or possible trail of comb'd antibiotics.

 

Do you know if your kids have any binding immune complexes?

 

-Wendy

Posted

I dont know what binding complexes are?

What I do know is your story sounded so familiar to me and that is what made me even do LYME testing.

My daughter 1 presents with tics and daughter 2 attention problems.

Cannot get rid of strep.

I am calling your doctor today.

We want our lives back.

I am fearful of all the homeopath pills. we can hardly get one down a day.

I am also going forward with IGENEX tests.

Posted (edited)

Bands 30 and 41 and lyme significant and band 18 is lyme specific (per dr J and dr harris from igenex). Dr. J said that band 18 is like the tusk on the elephant in that if you are positive for band 18 you have lyme. I am not telling you that you have lyme...just telling you whaat was told to me by a highly respected lyme doctor. I would suggest seeing a good lyme doctor. You can contact Ilads for doc referrals. Good luck.

Kim

What does this mean?

I have just started the ball rolling down the LYME path.

PANDAS for 3 years.

did not do IGENEX testing yet started with CLINICAL PATH LAB WESTERN BLOT

I tested myself and my daughters (PANDAS, or so we thought)

MY test came back

negative but bands present are: 58,41,30,18

1 Daughter only band 41 present with low CD57 number

2 daughter only band 41 present with CD 57 number

 

WE ALL HAVE HIGH STREP TITERS AND CANNOT GET RID OF THEM ON ANTIBIOTICS

 

help if you have any idea what all this means.

P.S. I live in NON TREATING LYME STATE.

Edited by momofgirls

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