Dx Lyme - after PEX for PANDAS

[Megs_Mom]

I am having dull aches right now in my lower back. I have had back issues prior to Lyme Diagnoses off and on for about 6 years. When I started treatment my back felt a ton better..... and over the last two days its killing me, its like nerve pain or something. Feels like I have the flu in lower back and can hardly lift my daughter. I've been on multiple antibiotics for 3 months now. We are currently provoking for Bartonella. Trust me, I'll be happy when this passes.

 

Meg's Mom when did your DH start treatment? Your husband neck issues sound painful... I sure hope his herxing moments are brief.

 

-Wendy

Yuck, that does sound awful. He started a month ago, but we have had to take a break, which means he has just started over again. So month 2 will start on 1/20. He injured his back to the point of immobilization twice this year, once about the same time as starting the Babesia treatment. As a result, we had to stop & use Prednisone, and so we wrecked the babesia treatment. It has been a rather frustrating time, but our LLMD has been very helpful & supportive, and we've just had to deal with the first emergency, and then move onto the next step. Given how long he has suffered, he has a great attitude, and is just eager to be done with all this, and to feel human again. We think the back injury is likely due to the pain he was having from babesia and bartonella, that was causing him to hold his body all wrong.

 

I hope the herxing is brief too - he has been through enough. But mostly, I want my family back in one piece, as we all do here. Hopefully 2011 will be a good year for all. 2008 and 2009 were the years of our mystery illness's. 2010 has been a year of healing for our PANDAS daughter, but a year of pain and discovery for dh. 2011... healing, we hope!

 

We were able to laugh tonight about the last year. Our goal set Jan 1st was to figure out what was happening to him, and to refuse to give in to the diagnosis' he was getting without a fight (ALS, Fibermyalgia, Psorriac Arthritis, Neuropathy - all sudden onset at around the same time, all waxing & waning in symphony, all increasing over time, all leaving permanent damage.... He even had one doc tell him it was in his head. Another said "I am blase to pain - you will just have to get used to it). Prior to all this, he was extremely healthy, never sick, exercised daily, very healthy diet. Now he is starting over again with trying to just walk around the block. Maddening! Anyway, we laughed because we live in NC, so we had to drive 6 hours each way to find an LLMD. It was the longest ride of our lives and I told my best friend after that we might be on the brink of divorce. He was so mad at me for making him travel there & it was an experience so outside of our comfort zone. OMG, I hope never to repeat that drive home again in my life!

[sf_mom]

Wow!!!!!!

 

Here is what I know: My back issues were gone, gone, gone and even canceled my standing chiropractor appointments. I have felt wonderful in that regard since starting treatment. The back pain came back full force but it was not a stabbing pain but dual aches and strangely 'like nerve' pain. Its lasted about two days. I was managing the pain with Advil and Epsom Salt baths.... both really helped. This morning I am 'back' to my same old self and feeling much better. The aches came along with other symptoms of headaches, tolerance levels, ETC. What can I say.... I feel for your husband. There is a brighter future and he will gain his life back but it may be rough going... thankfully these episodes seem brief so far.

 

I have truly seen the sickest with Lyme in our Dr.'s office. I am grateful we discovered this before it got much, much worse. I look forward to hearing of your husband's successes with treatment.

 

Happy Holidays.