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Posted

I have one PANDAS child no Western Blot bands pos and one PANDAS child with possible lyme. Does anyone have thoughts if any symptoms are seen more in Lyme kids, PANDAS kids or Lyme and PANDAS together.

 

Both kids have some of the same symptoms but they also have symptoms that are different. Both have tics, one has frequent urination one dosen't etc.

Posted

Bio,

 

Were the western blot tests from Igenex? or other lab? What are the positive or Indeterminate bands?

 

I'm not sure if I'm understanding your question regarding symptoms. As to the neuropsych symptoms that are common to many here, those are found in both PANDAS and PITAND (lyme, bartonella, myco, other...). But the lyme symptoms list is more far reaching. So you could have ONLY the neuropsych symptoms, and/or you could have other symptoms. One thing often found with lyme, is that the symptoms come and go, change over time, migrate to other areas of the body.

IT WILL BE A UNIQUE PRESENTATION FOR EACH INDIVIDUAL. (and yes, urination issues can be a symptom).

Below I'll copy extensive symptom list (all the neuropsych symptoms are not listed, but the can definitely be part of the picture), but also see the "helpful links" folder above for article titled "evaluating your child for tick borne diseases." It's very helpful.

 

 

Symptoms of Lyme Disease

The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)

Rash at site of bite

Rashes on other parts of your body

Rash basically circular, oval and spreading out (more generalized)

Raised rash, disappearing and recurring

 

 

Head, Face, Neck

Unexplained hair loss

Headache, mild or severe, Seizures

Pressure in head, white matter lesions in brain (MRI)

Twitching of facial or other muscles

Facial paralysis (Bell's Palsy, Horner's syndrome)

Tingling of nose, (tip of) tongue, cheek or facial flushing

Stiff or painful neck

Jaw pain or stiffness

Dental problems (unexplained)

Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose

 

 

Eyes/Vision

Double or blurry vision

Increased floating spots

Pain in eyes, or swelling around eyes

Oversensitivity to light

Flashing lights/Peripheral waves/phantom images in corner of eyes

 

 

Ears/Hearing

Decreased hearing in one or both ears, plugged ears

Buzzing in ears

Pain in ears, oversensitivity to sounds

Ringing in one or both ears

 

 

Digestive and Excretory Systems

 

Diarrhea

Constipation

Irritable bladder (trouble starting, stopping) or Interstitial cystitis

Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

 

 

Musculoskeletal System

 

Bone pain, joint pain or swelling, carpal tunnel syndrome

Stiffness of joints, back, neck, tennis elbow

Muscle pain or cramps, (Fibromyalgia)

 

 

Respiratory and Circulatory Systems

 

Shortness of breath, can't get full/satisfying breath, cough

Chest pain or rib soreness

Night sweats or unexplained chills

Heart palpitations or extra beats

Endocarditis, Heart blockage

 

 

Neurologic System

 

Tremors or unexplained shaking

Burning or stabbing sensations in the body

Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis

Pressure in the head

Numbness in body, tingling, pinpricks

Poor balance, dizziness, difficulty walking

Increased motion sickness

Lightheadedness, wooziness

 

 

Psychological well-being

 

Mood swings, irritability, bi-polar disorder

Unusual depression

Disorientation (getting or feeling lost)

Feeling as if you are losing your mind

Over-emotional reactions, crying easily

Too much sleep, or insomnia

Difficulty falling or staying asleep

Narcolepsy, sleep apnea

Panic attacks, anxiety

 

 

Mental Capability

 

Memory loss (short or long term)

Confusion, difficulty in thinking

Difficulty with concentration or reading

Going to the wrong place

Speech difficulty (slurred or slow)

Stammering speech

Forgetting how to perform simple tasks

 

 

Reproduction and Sexuality

 

Loss of sex drive

Sexual dysfunction

Unexplained menstral pain, irregularity

Unexplained breast pain, discharge

Testicular or pelvic pain

 

 

General Well-being

Phantom smells

Unexplained weight gain, loss

Extreme fatigue

Swollen glands/lymph nodes

Unexplained fevers (high or low grade)

Continual infections (sinus, kidney, eye, etc.)

Symptoms seem to change, come and go

Pain migrates (moves) to different body parts

Early on, experienced a "flu-like" illness, after which you have not since felt well.

Low body temperature

 

Allergies/Chemical sensitivities

 

Increased effect from alcohol and possible worse hangover

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