Can you have PEX after having 2 IVIG's?

[Joan Pandas Mom]

Has anyone had PEX after having IVIG's. Would Pex wipe out any progress from the IVIG's? My son is a tiny, tiny, bit better (yesterday was 6 weeks post IVIG #2). I have been tossing around the idea of PEX too, but am wondering if it is too late.

[KeithandElizabeth]

Hello:

 

I am sorry you are not seeing more progress from the IVIG's.

 

I know you did the IGENEX test and I am wondering if ANY bands showed any response even a indeterminate response. How about your son's mycoplasma levels... are the IGG's and/or IGM's elevated?

 

Elizabeth

[Joan Pandas Mom]

Thanks Elizabeth. A few bands on the Igenex were +. I don't have it with me but when I look at it again I will post. His IgM was elevated and has been since the winter. We just switch to Omnicef 2 weeks ago. I think it is helping. I thing he became resistant to Augmentin and Azithro.and possibly Biaxin. He has been on abx for 1 year now yet had either strep or staph in his nose when we went to the ENT 2 weeks ago.

[KeithandElizabeth]

I would definitely go see an ILADS LLMD if he had a few bands positive. If the IVIG's are not completely curing your son, then my opinion would be to search for an infection/virus that may be the root of his symptoms. We were at that stage last winter and I know the desperation you must feel!

 

Elizabeth