ASO Titers

[purple66p]

We just got back from our 2nd visit with the neurologist. Good news: he accepts Pandas as a diagnosis. Not so good: isn't convinced that there is a clear-cut treatment path, and seems opposed to IVIg. I left him with our Cunningham results and a few papers to read. It is interesting: he had noted a correlation between tics and strep a number of years ago before most of the literature was published. Our family doc had prescribed Augmentin (per my request) but the neurologist prefers Azith, which is OK by me since we're making very little progress with Augmentin. Tics are better, but mood lability (read: tantrums) are up.

 

In June his ASO was tested (208) and now it is 200. Norm is <=150 according to the lab write-up. He's been on antibiotics most of this time (Doxycycline, Amoxicillan, now Augmentin). I know that Pandas isn't necessarily strictly correlated to ASO, but shouldn't this be going down by now? I guess we'll see what the Azith will do.

[peglem]

We just got back from our 2nd visit with the neurologist. Good news: he accepts Pandas as a diagnosis. Not so good: isn't convinced that there is a clear-cut treatment path, and seems opposed to IVIg. I left him with our Cunningham results and a few papers to read. It is interesting: he had noted a correlation between tics and strep a number of years ago before most of the literature was published. Our family doc had prescribed Augmentin (per my request) but the neurologist prefers Azith, which is OK by me since we're making very little progress with Augmentin. Tics are better, but mood lability (read: tantrums) are up.

 

In June his ASO was tested (208) and now it is 200. Norm is <=150 according to the lab write-up. He's been on antibiotics most of this time (Doxycycline, Amoxicillan, now Augmentin). I know that Pandas isn't necessarily strictly correlated to ASO, but shouldn't this be going down by now? I guess we'll see what the Azith will do.

If he calls Dr. Cunningham- she is very responsive to Dr. questions!

[momcap]

In June his ASO was tested (208) and now it is 200. Norm is <=150 according to the lab write-up. He's been on antibiotics most of this time (Doxycycline, Amoxicillan, now Augmentin). I know that Pandas isn't necessarily strictly correlated to ASO, but shouldn't this be going down by now? I guess we'll see what the Azith will do.

 

Same story here - ASO at 512 in August, now 539 despite penicillin, amoxicillin and zithro. I am also confused as to why it isn't going down. Is he still infected? Or is his immune system going haywire still trying to fight an infection that isn't there? Or is it normal for levels to persist and rise this many months after an infection? I just don't get it.