LLMD appt. in KC update!

[cobbiemommy]

Saturday, we went to our LLMD appt. We saw the doctor at seven at night on a Saturday night, because otherwise we would have had to wait until after Christmas. To me, that is amazing right there.

 

Thirty seven vials of blood, one stool sample and one urine sample were analyzed. The results were: (drumroll please) Baronella: positive

Ehrichia: Negative

Rocky Mountain Spotted Fever: Positive

Babesia: Positive

 

Viruses:

Ebstein Barr Virus-Active

HHV6-Active

HHV1-Active

Parvovirus- Active

 

Mycoplasma Pneumonia: Positive

Chlamydia Pneumonia: positive

H pylori (in gut): Positive

 

In addition, he is reacting terribly to wheat and unable to digest it. Also, his liver is not making any bile to digest fat. We will be taking wheat out of his diet, and adding in digestive enzymes and Oxbile to supplement.

 

Hypercoagulation is a factor in his blood. This affects the blood (oxygen, nutrients, and antibiotics) being transported to the cells. His body is being deprived of the oxygen it needs. He will begin taking Heparin to help bring down the clotting factor.

 

C4a and C3a are two tests that were performed at LabCorp. These two tests are for inflammation. Both were high. The C4a test has a value range of 358-1883. DS's level was over 6,000. Basically off the chart!

 

After making some supplement changes and going gf towards the end of the week, we will be starting Doxycylcline next weekend and keep taking the Bicillin LA and Zithromax. Also, we will be adding in monolaurin, mastica, and an iodine supplement.

 

Just writing this helps me to make some sense of all my notes and the lab results. Today, I plan to spend a lot of time charting out the medications and supplements. Quite honestly, I am pretty overwhelmed and blown away by just how sick my little man is. Please offer up a prayer for him. He is so good hearted and loving. He said he would like to grow up to be a priest, but he can't because he wants to be a daddy, too! Right now, I just want to give him the chance to grow up.

 

Cobbie

[momofgirls]

Oh my gosh Cobbie,

I am sorry and am sure you are completely overwhelmed. Poor little guy. At least now you know! You have really gotten to the root of his problems and now you can get him the help he needs. He can now begin to recover.

What is your doctor doing to address viruses, if anything? Good luck!

Kim

 

 

 

 

Saturday, we went to our LLMD appt. We saw the doctor at seven at night on a Saturday night, because otherwise we would have had to wait until after Christmas. To me, that is amazing right there.

 

Thirty seven vials of blood, one stool sample and one urine sample were analyzed. The results were: (drumroll please) Baronella: positive

Ehrichia: Negative

Rocky Mountain Spotted Fever: Positive

Babesia: Positive

 

Viruses:

Ebstein Barr Virus-Active

HHV6-Active

HHV1-Active

Parvovirus- Active

 

Mycoplasma Pneumonia: Positive

Chlamydia Pneumonia: positive

H pylori (in gut): Positive

 

In addition, he is reacting terribly to wheat and unable to digest it. Also, his liver is not making any bile to digest fat. We will be taking wheat out of his diet, and adding in digestive enzymes and Oxbile to supplement.

 

Hypercoagulation is a factor in his blood. This affects the blood (oxygen, nutrients, and antibiotics) being transported to the cells. His body is being deprived of the oxygen it needs. He will begin taking Heparin to help bring down the clotting factor.

 

C4a and C3a are two tests that were performed at LabCorp. These two tests are for inflammation. Both were high. The C4a test has a value range of 358-1883. DS's level was over 6,000. Basically off the chart!

 

After making some supplement changes and going gf towards the end of the week, we will be starting Doxycylcline next weekend and keep taking the Bicillin LA and Zithromax. Also, we will be adding in monolaurin, mastica, and an iodine supplement.

 

Just writing this helps me to make some sense of all my notes and the lab results. Today, I plan to spend a lot of time charting out the medications and supplements. Quite honestly, I am pretty overwhelmed and blown away by just how sick my little man is. Please offer up a prayer for him. He is so good hearted and loving. He said he would like to grow up to be a priest, but he can't because he wants to be a daddy, too! Right now, I just want to give him the chance to grow up.

 

Cobbie

[KeithandElizabeth]

Oh boy, at least your son is testing positive for these bacterias/viruses and you can attack them. I am sure you are feeling stressed!

 

What is your LLMD doing for the viruses?

 

Our LLMD feels that babesia is the hardest to treat and mycoplasma should be the first to go. He says that sometimes the viruses prevent the body from dealing with the bacterias and uses anti-virals when needed. Artemisinin is supposed to be great for babesia.

 

Wow, hard to imagine that these little kids can carry so many bad critters inside of them! How is your son doing now?

 

We will be here for you!

 

Elizabeth

[NancyD]

Oh wow, Cobbie, I am overwhelmed just thinking about this. That's a lot to take in! Keep us posted on how your little guy is doing with treatment. Thankfully you are getting to the bottom of everything.

 

Nancy

[sf_mom]

Geez.... I am so sorry too. I am so happy you unraveled this for your son. He can and will recover. We'll be here to support all the way through this process!!!!

[cobbiemommy]

She prescribed Monolaurin and Transfer Factor PlasMyc to help with the viruses. The Heparin sublinguals are going to be $255.00 a month and not covered by insurance. Our other option is to give him two shots a day, every day, of the Heparin. Those shots would be covered by insurance, but only at 50%. Around $85.00 after ins. I went ahead and ordered the sublinguals from the compounding pharmacy for this month. One worry at a time, right???

 

The Mastica is supposed to help with the H-Pylori. It should be short term of two months. Also, she added OlaLoa, which is supposed to be a vitamin supplement. Don't have it yet. Scheduling around the meals and doxycycline looks to be the hardest so far. Oh yeah, and that little thing called gluten free... Ugh....

 

Good thing was, he seemed to feel really good this morning! Makes this all worthwhile.

 

Hugs to all,

Cobbie

[sf_mom]

Cobbie,

 

We are a Dairy Free/Casein Free household due to children's sensitivities to those items and 'leaky gut syndrome'. They do not currently show sensitivities for Gluten but are working towards slow elimination of Gluten and refined sugars. Just simple good, fresh eating.. What has helped me get beyond the fears of diet adjustment is to 'slowly' incorporate stuff and keeping it simple.

 

The first thing we did was find a good milk alternative and breakfast foods. You would be surprised at what Whole Foods has to offer (if there is one near you).... Anyway, the slow evolution of replacing items and finding things the kids liked helped me to be more motivated/confident that I could really change their diet. In other words, I didn't clear out the pantry the day we discovered these specific allergies.

 

We also had a stomach parasite that cleared in 48 hours of starting Lyme Protocol (Alinia: anti-parasitic, cyst buster)... I do not think the H. Pylori will be one of the first infections to check off the list.

 

Best of luck with everything!!!!!!!!

Edited November 15, 2010 by SF Mom

[matis_mom]

He said he would like to grow up to be a priest, but he can't because he wants to be a daddy, too! Right now, I just want to give him the chance to grow up.

 

Cobbie

Bless his heart! He is dealing with a lot. It seems your LLMD is on to of everything. We'll keep him in our prayers. Funny thing is my 13-yo PANDAS ds's confessor thinks he might be a good candidate, and the parish priest just invited him to a vocations dinner that was only supposed to be for 16 and up! Hmmmm.

God definitely works in mysterious ways, and He has it all under control. I know He was wonderful plans for our kids, and maybe going through all this will prepare them to help others in the future.

[Johnsmom]

Cobbiemommy-

 

Oh you must feel some sense of relief even though you and your boy have a tough road ahead. He has such a big heart and he will get well. We are all praying for him. Please keep us posted.

 

johnsmom

 

 

Saturday, we went to our LLMD appt. We saw the doctor at seven at night on a Saturday night, because otherwise we would have had to wait until after Christmas. To me, that is amazing right there.

 

Thirty seven vials of blood, one stool sample and one urine sample were analyzed. The results were: (drumroll please) Baronella: positive

Ehrichia: Negative

Rocky Mountain Spotted Fever: Positive

Babesia: Positive

 

Viruses:

Ebstein Barr Virus-Active

HHV6-Active

HHV1-Active

Parvovirus- Active

 

Mycoplasma Pneumonia: Positive

Chlamydia Pneumonia: positive

H pylori (in gut): Positive

 

In addition, he is reacting terribly to wheat and unable to digest it. Also, his liver is not making any bile to digest fat. We will be taking wheat out of his diet, and adding in digestive enzymes and Oxbile to supplement.

 

Hypercoagulation is a factor in his blood. This affects the blood (oxygen, nutrients, and antibiotics) being transported to the cells. His body is being deprived of the oxygen it needs. He will begin taking Heparin to help bring down the clotting factor.

 

C4a and C3a are two tests that were performed at LabCorp. These two tests are for inflammation. Both were high. The C4a test has a value range of 358-1883. DS's level was over 6,000. Basically off the chart!

 

After making some supplement changes and going gf towards the end of the week, we will be starting Doxycylcline next weekend and keep taking the Bicillin LA and Zithromax. Also, we will be adding in monolaurin, mastica, and an iodine supplement.

 

Just writing this helps me to make some sense of all my notes and the lab results. Today, I plan to spend a lot of time charting out the medications and supplements. Quite honestly, I am pretty overwhelmed and blown away by just how sick my little man is. Please offer up a prayer for him. He is so good hearted and loving. He said he would like to grow up to be a priest, but he can't because he wants to be a daddy, too! Right now, I just want to give him the chance to grow up.

 

Cobbie

[PacificMama]

Hi Cobbie,

 

I've not been able to post much lately, but I saw your update.

 

I hope you take some comfort in the knowledge you now have. And we look forward to hearing about your son's progress!

I'm impressed with the comprehensive testing that was done. It really gives you a good picture of what's happening.

 

Best wishes!

Mary