two diagnosis

[TracyRee]

DS was diagnosed with PANDAS when he was 3, almost 4. We couldn't have missed it as he had compulive urination that we couldn't figure out for 3 weeks. I heard about pandas and insisted on strep culture that came back positive. His compulsive urination completely subsided after 24 hours on antibiotics.

 

Things were fine for about a year, then he started having behavior problems. In this year he'd had some major life changes, so behavior stuff was to be expected. May of that year we had a baby. August that same year he started preschool (3 hours a day in hopes of making the transition to kindergarten easier for him the next year. he was 5 and we were holding him back from kindy one year)

 

the preschool was concerned about his behavior (lack of social awareness, self care skills...)

 

long story short he was diagnosed with asperger's in march of this year. s the year has progressed, so has his "behaviors" (eye contact almost non existant, chronic irritability, hitting when frustrated)

 

with the two diagnosis, i'm completely at a loss as to what things we can seek treatement fro and what we need to work on with behavioral therapy. i mean, most of it can be worked on with behavioral therapy, but the chronical irritability.... could that be pandas and we could be doing more for him as far as medical treatemt? how do i know how far i need to go with treating for pandas when he has all these aspergers traits as well??

 

 

as of now, he's been on a 200mg twice a week dose of azithromycin since january of this year. what else can i do for him? we're walkign on eggsshells and miss him terribly.

[peglem]

DS was diagnosed with PANDAS when he was 3, almost 4. We couldn't have missed it as he had compulive urination that we couldn't figure out for 3 weeks. I heard about pandas and insisted on strep culture that came back positive. His compulsive urination completely subsided after 24 hours on antibiotics.

 

Things were fine for about a year, then he started having behavior problems. In this year he'd had some major life changes, so behavior stuff was to be expected. May of that year we had a baby. August that same year he started preschool (3 hours a day in hopes of making the transition to kindergarten easier for him the next year. he was 5 and we were holding him back from kindy one year)

 

the preschool was concerned about his behavior (lack of social awareness, self care skills...)

 

long story short he was diagnosed with asperger's in march of this year. s the year has progressed, so has his "behaviors" (eye contact almost non existant, chronic irritability, hitting when frustrated)

 

with the two diagnosis, i'm completely at a loss as to what things we can seek treatement fro and what we need to work on with behavioral therapy. i mean, most of it can be worked on with behavioral therapy, but the chronical irritability.... could that be pandas and we could be doing more for him as far as medical treatemt? how do i know how far i need to go with treating for pandas when he has all these aspergers traits as well??

 

 

as of now, he's been on a 200mg twice a week dose of azithromycin since january of this year. what else can i do for him? we're walkign on eggsshells and miss him terribly.

Aspergers is just a label for neurological symptoms...Many PANDAS kids on this forum have ASD traits that resolve w/ PANDAS remission. Personally, I think your son's ABX dosage is too low. The fact that you say one of the life changes that brought on symptoms was going to preschool, AKA germ-factory, makes me wonder if it was exposure to strep and/or other microbes that caused the problem, more than just dealing with change.

Behavioral therapy did not work for my child, and I am so remorseful for all the years we tried to make her responsible for things she truly had no control over. At any rate, behavioral therapy is bound to be much more effective if you treat the underlying medical problem aggressively.

[TracyRee]

thank you, id like to treat more aggresively. what do i ask for? higher dose of abx and what else?