Any local support out there / northern bay area?

[amyjoy]

Like many, we have been dealing with an insurance gap. My DS14 really should be treated with IVIG, and we just don't have that kind of money any more. So, our friends in our small community are putting on a fundraising event, this coming Sunday afternoon. Aside from the fact they literally had to twist my arm to go for this (it was more like, this train is departing you better jump on or be run over...)over this past month, they have been mobilizing a mass effort through our community to do this event, complete with entertainment and an auction and a bunch of stuff.

 

It has been very humbling for me. My DS, a freshman in high school, was very upset about it at first, and certain it would mean "social suicide". But our friends said, you just better get over it because its more important to us that you are treated and well than any thing else. So we've been processing it, and so has our community, and the kids also, and there has been nothing but outrage at the system that put us in this position, and kindness and acceptance towards DS and a desire to help. Its hard to take it in.

 

DS understands that this event is not just about him, it is about all of us, and all of our children who need treatment yet are turned down by insurance. So he decided that he can take on this event, as a child with PANDAS, representing all children with PANDAS, and we will do some education and handout information about PANDAS at the event. He will even play drums in a little rock band with a couple of his friends. And he is committed that any money left over in the fund be given to another child with PANDAS who needs help. Kids naturally have big hearts.

 

He was wondering if by any chance, any other children with PANDAS might be able to come to the event for moral support, so with the encouragement of a mom on this forum, I am putting it out there. I hate asking for help, and i feel like I'm really using up alot of my quota right now, so this is hard, and plus, we live quite a ways north of SF in Sebastopol, out side of Santa Rosa. But if anyone is inclined to join us as our guests, it would be an honor to have you, and here is info on the event: www.helplance.info

 

Thank you for all of your help, every day, and for reading this post.

Blessings to you and your children

amy