Anyone do NIMH study on Rizolue

[melanie]

Cant get insurance to cover the meds.Psy wants me to contact them to enter study.

 

Melanie

[MomWithOCDSon]

Melanie --

 

We ultimately didn't enter the study, but I had several conversations with the screener/social worker with Dr. Grant's office who's conducting the study. My notes from those conversations are as follows:

 

- have to have had stable medications (med and dosage level) for minimum of 6 weeks prior to entering study

- some meds are contra-indicated, so they have to be discontinued or switched (and leveled) at least 6 weeks prior to entering the study (don't have a full list, but know that we were told specifically that Luvox and NAC cannot be in the picture)

- don't know where you live, but we're in the Midwest and the study is being conducted either in PA or DC, I believe, so we were in for lots of travel and school interruptions: something like 11 visits to the office for the first 12 weeks of the study. Then after that, I guess you can conduct follow-ups with your local doctor except for periodic.

- have to discontinue CBT/ERP during the study period

- and, of course, the big one: you MAY get the Riluzole, or you may get the placebo, for the first 12 weeks.

 

That's what I know. Good luck to you, and if you decide to take the ride, let us know how it goes!