Very happy with our Neurologist

[Suzan]

We saw our neurologist today for my girls. He's the one who has been treating dd9's PANDAS with IVIG's and monitoring dd8's seizures. He is not against us pursuing lyme and actually thinks it's a good idea. He would like to talk to our LLMD and possibly get a working relationship with her if she's interested. He believes lyme could be causing our issues and will be a good resource here. I am really happy about that.

 

Our plan is to start treatment with the LLMD and then check back with him in a few months. He has other ideas after we treat the lyme if we don't get to 100%.

 

He is starting a clinic to just treat pandas, autism and other conditions that are autoimmune/neurological/movement disorders. He is an outside the box thinker and treats the patient and does not just respond by the book. I really like that. He has to go through his process to get to the answers which might take longer than I like. But I feel like he will help give me thoughts about whether something is quackery or not and help me feel OK about going outside mainstream doctors for this.

 

DD8 has to get an EEG in 2 weeks for her seizures. We see our LLMD on Tuesday.

 

Susan

[momofgirls]

Wow Suzan that was a refreshing post! So glad you have found an open minded physician willing to help.

Kim

[Megs_Mom]

Whohooooooooo!!!!! I am so thrilled! I love him and now I love him MORE! Hope things are really turning around for you and your girls.

[sf_mom]

Fantastic... In roads in NC!!!

[KeithandElizabeth]

Great news Susan. These doctors are are to find!

 

Elizabeth

[PacificMama]

That's fantastic Susan. So nice you have open-minded and supportive doctors.

 

Mary

[mama2alex]

I loved this post - if it were on Facebook I would have hit LIKE! It's so good to hear you have such an open-minded and helpful doctor on your team.