Help! Back to square 1!

[laure]

Hi Laure, I am so sorry this is up and down. I can share that we had similar experiences, and I finally have come to the conclusion that I need to step back and look at weekly trends rather then the day to day (which can drive one nuts as it can be so variable.) In our experience, it took about 3 to 4 weeks after the steroids to see some leveling--the ups and downs lessened.

 

May I ask you -- Did you say that Augmentin is said to be a problem if it is Lyme? Could that be right? Do you know anything else about that issue or can you send me any info. For our younger d this could be important--thank you.

[laure]

What I think I understood from my brief conversation this morning is that her sudden onset of symptoms with just 8 hours of Augmentin could indicate a problem in addition to PANDAS and that if it was Lyme the Augmentin could really ramp up the symptoms. (But he also mentioned possibilities of bartonella and one or two other tic-borne illnesses I think). I was pretty upset at the time, so just heard the "action list" and not so much the science behind it. We had really had nothing but improvement from the steroids and zith over our first month of treatment, so this was sudden and a little too much of a coincidence.