Lyme & Narcolepsy?

[EmersonAilidh]

Stumbled upon this last night...

 

http://www.sleepeducation.com/Disorder.aspx?id=57

 

& it got me thinking.

 

"Who gets it?

 

In rare cases, people with a disease that affects the brainstem will get this condition. The disease causes damage to the brain system from areas in which dream sleep originates. This results in narcolepsy.

Diseases that may cause narcolepsy include the following:

 

Multiple sclerosis

Myotonic dystrophy

Parkinson disease

Sarcoidosis"

 

Well, we've established that Lyme Spirochetes like braaains (can you hear my zombie voice there? ), but my question is... Are they limited to certain areas or is it just a free-for-all once they get in? A better question might even be... Does anyone know??? I've never read a solid explanation for Lyme Fatigue, & if it can affect the brain stem would it be off base to think that Lyme could potentially be a part of that list? Not trying to suggest that ALL Lyme Fatigue is Narcolepsy, by the way. This is all just yet another rambling thought of mine...

 

Keep in mind here that Narcolepsy does not necessarily imply "passing out". The general image of Narcoleptics is someone who goes from feeling just dandy, standing up straight to asleep on the floor. Such is not the case though. The number one Narcolepsy symptom is Excessive Daytime Sleepiness. Hm... Sound familiar? Granted, "sleep attacks" & Cataplexy (sudden loss of muscle tone) are beyond common IN Narcolepsy, but having Narcolepsy doesn't necessarily mean that you should be prepared to randomly drop at any given time.

[PacificMama]

Hi Emerson,

I probably wasn't clear when I posted to you on the PANDAS board. But yes, I've read narcolepsy as a symptom of neuro lyme. Have you googled "narcolepsy lyme" yet?

 

And yes, I get that the $59 for conference dvd is a squeeze. Maybe I could send/lend my copy to you once I've reviewed it.

 

Good luck with the sleep problems. I know it is one of the most maddening symptoms.

Mary

 

Stumbled upon this last night...

 

http://www.sleepeducation.com/Disorder.aspx?id=57

 

& it got me thinking.

 

"Who gets it?

 

In rare cases, people with a disease that affects the brainstem will get this condition. The disease causes damage to the brain system from areas in which dream sleep originates. This results in narcolepsy.

Diseases that may cause narcolepsy include the following:

 

Multiple sclerosis

Myotonic dystrophy

Parkinson disease

Sarcoidosis"

 

Well, we've established that Lyme Spirochetes like braaains (can you hear my zombie voice there? ), but my question is... Are they limited to certain areas or is it just a free-for-all once they get in? A better question might even be... Does anyone know??? I've never read a solid explanation for Lyme Fatigue, & if it can affect the brain stem would it be off base to think that Lyme could potentially be a part of that list? Not trying to suggest that ALL Lyme Fatigue is Narcolepsy, by the way. This is all just yet another rambling thought of mine...

 

Keep in mind here that Narcolepsy does not necessarily imply "passing out". The general image of Narcoleptics is someone who goes from feeling just dandy, standing up straight to asleep on the floor. Such is not the case though. The number one Narcolepsy symptom is Excessive Daytime Sleepiness. Hm... Sound familiar? Granted, "sleep attacks" & Cataplexy (sudden loss of muscle tone) are beyond common IN Narcolepsy, but having Narcolepsy doesn't necessarily mean that you should be prepared to randomly drop at any given time.