monarchcat Posted October 26, 2010 Report Posted October 26, 2010 I haven't wanted to add anything to my son's regimen of meds/supplements for awhile because he's been resistant to the number of pills, but I've always wanted to try a b complex supplement (either with a good amount of inositol in it, or with a separate inositol supplement). Do any of you give b complex and if so could you be specific about dosage for both the b's and inositol if given separately? I did read a couple of threads where people mentioned that they felt their child's tics worsened after starting B vitamins, but I'm willing to give it a try.
DebC Posted October 26, 2010 Report Posted October 26, 2010 I haven't wanted to add anything to my son's regimen of meds/supplements for awhile because he's been resistant to the number of pills, but I've always wanted to try a b complex supplement (either with a good amount of inositol in it, or with a separate inositol supplement). Do any of you give b complex and if so could you be specific about dosage for both the b's and inositol if given separately? I did read a couple of threads where people mentioned that they felt their child's tics worsened after starting B vitamins, but I'm willing to give it a try. Our daughter is 10 and takes Cataplex B by Standard Process. The recommended dosage from our nutritionist is 2 tablets in the morning and 1 tablet in the afternoon. We always take the morning dose but usually miss the afternoon dose. I figure she is getting a decent amount in that morning dose. Tics were not a large part of her PANDAS symptoms. Anxiety and OCD were her big issues. Last spring we did see a bit of eye twitching and blinking and those disappeared over the summer. The Cataplex B didn't bring them back. However, I can't speak for a child whose major symptom was tics. The best price I have found for that and the other supplements from Standard Process that we use is Amazon.com.
Sylvia Posted October 27, 2010 Report Posted October 27, 2010 B-50 complex is always a part of our regimine. Right now we are using Thorne brand. We have never had a problems with any of the B vitamins. (knock wood!)
matis_mom Posted October 27, 2010 Report Posted October 27, 2010 B-50 complex is always a part of our regimine. Right now we are using Thorne brand. We have never had a problems with any of the B vitamins. (knock wood!) The only problem I've had is with my daughter who cannot stand the smell of them! So now I put the capsule inside a gelcap and problem solved.
SearchingMom Posted October 27, 2010 Report Posted October 27, 2010 Hello, B-complex vitamins are the first supplements I started giving ds11 back in May 2010. We read about teens with thiamine deficiency and his symptoms were very close to those mentioned in a study I read about from the 80s. Teens who were given mega-doses (up to 600 mg) of thiamine showed obvious improvement after being labeled with a type of "Dr. Jekyll and Mr. Hyde" syndrome. But the more I learned about thiamine deficiency, I decided it was best to put ds11 on a full B-complex rather than just the thiamine. We use organically-made Garden of Life Vitamin Code RAW B-Complex capsules (also with live enzymes and probiotics) purchased from Whole Foods. Ds11 puts the contents of one capsule in OJ in the morning and again at night. Each capsule also includes (IMO fairly small) doses of inositol (13 mg), choline, calcium, phosphorus, PABA, folic acid, and biotin. He says they taste funny, but he has continued to take them regularly, with a few exceptions on nights of high aggression. He also takes twice a day 200mg of inositol in a separate product called TruCalm which also contains niacin, vitamin B6, GABA, taurine, glycine, magnesium, and valerian. So he's getting extra B-vitamins from the TruCalm, but I read niacin is a natural sedative and sometimes is used successfully to treat schizophrenics. For three weeks ds11 has taken broad-spectrum enzymes (TriEnza from Houston Pharmaceuticals) and extra magnesium (orange-flavored powder) in OJ, morning and night. He's also started 5-HTP and the TruCalm six days ago (also in OJ with weird flavors masked by the orange-flavored magnesium powder) which has really helped keep him calmer when rages start - even it seems to prevent them on occasion. Sometimes I add extra 5-HTP (50-100 mg) to milkshakes/soy milk when he has ingested something we discover is a trigger food to temporarily boost serotonin production. I don't claim to know how all of this works, but I'm going to a naturopath in two days (without ds11) hoping he can help me sort out why certain supplements are helping and why. At this point I don't think ds11 has PANDAS; I'm 99% certain ds11 is phenol/salicylate sensitive which over time led to serotonin deficiency. Ds11 has EVERY symptom of serotonin deficiency! Since 80%-90% of serotonin is produced in the gastrointestinal system, I figure ingested artificial dyes, preservatives, additives, etc., deteriorated his enzymatic effectiveness (or it could be genetic enzyme trouble that was weakened by bad food stuff), overloaded his system with phenols, and gradually lowered the production of serotonin. And as each substance he's sensitive to is reintroduced, his reactions get stronger each time - I suppose like a person would react to a poison. This also explains why ds11 has dilated pupils after ingesting bad food stuff. The food diary we've been keeping has really helped us find these patterns and start making some connections. Now we're going to try the Feingold diet (as soon as I figure out how to get ds11 to agree) while continuing the current supplement regime, unless the natuopath has suggestions for changes/additions. Sorry to have gone on a tangent there. Hope this helps somewhat re: your original question. SearchingMom
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